Can lupus cause hair loss? How to cope?

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Brealool8

02/22/2019 at 1:34 AM

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Brealool8

Last activity on 01/10/2023 at 10:56 AM

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It might be the medication too. Anyway, hope you feel better :)

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Prefoas821

02/27/2019 at 7:41 AM

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Prefoas821

Last activity on 04/15/2026 at 3:45 PM

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I experienced hair thinning and minor hair loss prior to my diagnosis. Since I have been on treatment, I have not experience much hair loss, however.

Can lupus cause hair loss? How to cope? https://www.carenity.us/forum/other-discussions/living-with-lupus/hair-loss-and-lupus-785 2019-02-27 07:41:48

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Flibogoa1598

03/18/2023 at 6:49 AM

Flibogoa1598

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It might be the medication too. Anyway, hope you feel better :)

Can lupus cause hair loss? How to cope? https://www.carenity.us/forum/other-discussions/living-with-lupus/hair-loss-and-lupus-785 2023-03-18 06:49:13

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Moafleyn60

03/05/2019 at 9:11 AM

Moafleyn60

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I have recently been dx. with lupus but I’ve been dealing with fibromyalgia, UCTD and graves dz. I thought the hair thinning was from the graves dz. (thyroid dz)., but I was told by my Dr that it was lupus. I’m a mess right now. I’m always fatigued and in pain. My family try’s to be supportive but it’s hard to relate to something you know nothing about. I just purchased nioxin hair treatment. I was told it would help with thinning hair and hair loss. I am starting to have problems with a rash on my face. Can someone please tell me what I can use for this. Sincerely, Tzwifey99

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Tzwifey99

Can lupus cause hair loss? How to cope? https://www.carenity.us/forum/other-discussions/living-with-lupus/hair-loss-and-lupus-785 2019-03-05 09:11:12

9237Meysayve

03/08/2019 at 3:12 AM

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9237Meysayve

Last activity on 11/16/2023 at 1:34 AM

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@Moafleyn60‍ what medication are you on? some medications can cause hairloss also.

Can lupus cause hair loss? How to cope? https://www.carenity.us/forum/other-discussions/living-with-lupus/hair-loss-and-lupus-785 2019-03-08 03:12:35

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03/14/2019 at 9:58 PM

Sorry your going through, when I was on Methotrexate or Plaquenil tgey both made me bald. Now that I'm off them my hair is growing so pretty. I know its hard,pray it gets better.Can you try a hair and nail vitamin?

Can lupus cause hair loss? How to cope? https://www.carenity.us/forum/other-discussions/living-with-lupus/hair-loss-and-lupus-785 2019-03-14 21:58:44

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Glegous35

09/15/2026 at 1:32 PM

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Glegous35

Last activity on 09/26/2026 at 6:02 AM

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HELLO, I HOPE THIS WILL POST BECAUSE I SPEAK AT DOCTORS CONVENTIONS AND I AM WRITING A BOOK ABOUT LUPUS FROM A PATIENT'S POINT OF VIEW. IF YOU HAVE ANY QUESTIONS, THE FIRST OF MANY QUESTIONS: "YOU LOOK SO GOOD, HOW CAN YOU BE SO SICK"?? LISTEN TO YOUR BODY, IF YOU DON'T FEEL TIRED--LAY DOWN ANYWAY!!! THE MENTAL ABILITY HAS THE CONTROL ON THE PHYSICAL ABILITY---LAY DOWN ANYWAY!!!!! IT LIKE RECHARGING A BATTERY--IT WILL FADE OUT BUT WE NEED FOR IT NOT TO LOSE ALL THE ENERGY IT HAS LEFT. MY NAME IS MICHELE MCNEILL AND I HAVE SLE, LUPUS. IF ANYONE NEEDS ANY QUESTIONS ANSWERED--CALL ME: 909483-7386

BEST WISHES

MICHELE AKA MICKEY

Can lupus cause hair loss? How to cope? https://www.carenity.us/forum/other-discussions/living-with-lupus/hair-loss-and-lupus-785 2026-09-15 13:32:26

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Unregistered member

03/16/2019 at 11:12 PM

I been suffering with lupus for a long time some days are good and some are bad.. I have fibromyalgia,RA,I suffered 2 heart attack’s and I have 14 stents lupus has done a number on my body.. I’m always in pain and always have server chest pain it’s very hard living with lupus.. but I have a lot of support and it keeps me going

Can lupus cause hair loss? How to cope? https://www.carenity.us/forum/other-discussions/living-with-lupus/hair-loss-and-lupus-785 2019-03-16 23:12:23

Unregistered member

04/06/2019 at 5:14 AM

Does anyone here take Biotin supplement to deal with hair loss? Is is effective in reducing thinner hair and hair loss?

Can lupus cause hair loss? How to cope? https://www.carenity.us/forum/other-discussions/living-with-lupus/hair-loss-and-lupus-785 2019-04-06 05:14:41

Brealool8

04/08/2019 at 12:23 AM

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Brealool8

Last activity on 01/10/2023 at 10:56 AM

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91 comments posted | 49 in the Living with lupus group

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@Hidden username Yes! It makes your hair thicker! I also am taking collagen which has been, I believe, helping also. I also make sure now that my hair products have no parabens and sulfate. My hair now thicker and growing better than before! I cannot say it is soley because of the collagen and biotin and new hair products, but it must be helping. I also am taking fish oil now.

Can lupus cause hair loss? How to cope? https://www.carenity.us/forum/other-discussions/living-with-lupus/hair-loss-and-lupus-785 2019-04-08 00:23:22

Unregistered member

04/09/2019 at 4:28 AM

@Brealool8 thank you so much. I suffered from hair loss and fatigue because of lupus medications. Some people also recommend me Bitoin and Lupufree supplements to take, I'm hesitant between them.

Can lupus cause hair loss? How to cope? https://www.carenity.us/forum/other-discussions/living-with-lupus/hair-loss-and-lupus-785 2019-04-09 04:28:41

Unregistered member

04/10/2019 at 8:20 AM

my hair all of a sudden started really fall out. Had some blood workdone again my vitamin D level was a 9 it is suppose to be 100. so started taking vit. D things are better.but as you know lupus is different with everyone. jolove

Can lupus cause hair loss? How to cope? https://www.carenity.us/forum/other-discussions/living-with-lupus/hair-loss-and-lupus-785 2019-04-10 08:20:27

Brealool8

12/26/2019 at 6:06 PM

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Brealool8

Last activity on 01/10/2023 at 10:56 AM

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91 comments posted | 49 in the Living with lupus group

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I just wanted to update this post. The fish oil doesn't seem to be working, but the hair loss is less than before. It's true that I changed my diet (trying keto and avoiding sugar and dairy), so maybe it's that. Will update you all in another few months.

Can lupus cause hair loss? How to cope? https://www.carenity.us/forum/other-discussions/living-with-lupus/hair-loss-and-lupus-785 2019-12-26 18:06:17

Can lupus cause hair loss? How to cope?

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