Ankylosing Spondylitis and Energy

in the beginning before i was diagn0sed i was so weak i wanted to either take a break from breathing or be put on a ventilator i went to the er and was laughed at i was told i probably i had the beginning of a uti i had no symotoms and was on 10 mg of prednisone i am a retired rn

So many hospitals and ER's are so cruel. I know I won't know for sure if I have AS,  even though my dna has markers on so many chromosomes and I have MTHFR mutation , homozygous double compound.   I am only 61 and was going blind from cataracts in both eyes.  I had progressed to a 2 out of 4 which represents complete blindness. I now have new lens and I hope and pray Dec 10th to get to the bottom of this disease when I finally am able to see a Rheumatologist.  I have hernaited discs in cervical , one between thoracic and lumbar , and the rest lumbar.  My cervical spine has already started to fuse, and my neurosurgeon told me there is nothing they can do to help make it better.  Of course neither he, nor my chronic pain Dr. will tell me really what this is :(  .   I changed chronic pain Docs and he is sending me straight to the Reheumatologist.  Thank God  for him !   My previous Chronic Dr. said, " Oh , I could give it a long name, but it is really just part of old age" !   Well,  in that case Dr. I said,  I have had old age all my life !   Good Lord !   Pray for this 61 year old kid please !!! 

I’m often exhausted and have zero energy,  and when I Munster up enough to do anything physical I cannot do it very long

Hello members, hope you do not mind me tagging you in this discussion, but thought you may find this topic relatable to which you could lend advice or pick up advice from others,

@tadhouse1‍ @nomasAS‍ @Athijssen‍ @Anjelkiss‍ @AS1218‍ @Mbaulch‍ @Cleavitt05‍ @rwilsonjr67‍ @Simona‍ @Susan27th‍ @mark48‍ @DuchyCT‍ @fraskb‍ @sonkin‍ @Darkzerione‍ @johnsin‍ @DebraH‍ @Cynthia‍ @Nancrn44‍ 

definitely have a lack of energy, Find myself needing to sit down a lot more than used to.  If im tired, im trying to listen to my body and rest more. I try to eat energizing foods, fruits, veggies. Seems to help. 

Im going on my first big trip since i was diagnosed a year ago. Hoping I can do it

fatigue is a big problem with me to. This year in October it will be 20 years. But now I have more issues. It is very complicated.  How bad is your AS?