Patients Neuroendocrine tumor
How are your NETs being treated?
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The purpose of this discussion is to learn about different treatment options Neuroendocrine Cancer patients have.
I have stage IV, GI Neuroendocrine Cancer. I have several grade 1 tumors ( 2 of them over 4 cms!) in my omentum, small bowel, appendix, liver and right lung.
I am been treated with Lanreotide injections, 120mg, every 28 days and, so far, it has reduced my carcinoid syndrome symptoms drastically. I’m too early into my treatment to show any other progress (I was diagnosed just 2 months ago) and I am still waiting to get a Dotatate Scan to determine if any of the tumors can be surgically removed or recessed, as well is other treatment options.
I’ve read about different treatment options, both conventional and alternative, and I am wondering if you will be willing to share your experiences so to help new patients like me learn about the different options we have.
Hello Michel, thank you for opening this discussion. That's great that you've started to see some improvement with the lanreotide! Let me tag some other members who can possibly share with you.
Hi everyone, how are you today?
As you know, treatment options for neuroendocrine tumors tend to vary and range from surgery, cancer treatments like radiation and chemotherapy, to targeted drug therapy and more.
What treatments have you undergone for your neuroendocrine tumors? Have they been effective?
@Dh3510 @TerriEngels @mauidennis @JENN723 @Beckybarsness @Joonbug @Kurlee @Virginian @kathleenwis @Bhnt1109 @Vlinan6971 @BarbaraH @Shyro73 @Robmac @Hitch55 @RBO0813 @Cmloretto @Cats22 @sgyle1
Feel free to share with us here!
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Courtney_J, Community Manager, Carenity US
Quick update, I am going for surgery tomorrow morning ( December 14th, 2021 ) Getting a bowel resection and debulking as much as possible, my doctor says they are hoping to be able to remove 70% to 90% of the disease. I wont be Cancer free but I like those numbers!
I'll post another update whenever I can.
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