Patients Neuroendocrine tumor
Topic of the discussion
Posted on 7/22/20 12:00 AM
How are you doing?
Let's talk about NETs and daily life!
What impact have neuroendocrine tumors had on your daily life? Have you had to change aspects of your daily life or routine because of it? Has it had an impact on your personal or professional relationships? What do you think?
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Beginning of the discussion - 7/23/20How do NET impact your everyday life? https://www.carenity.us/forum/neuroendocrine-tumor/living-with-neuroendocrine-tumour/how-do-net-impact-your-everyday-life-2251
Posted on 7/23/20 6:26 PM
@Courtney_J I had to retire early because of my diagnosis. The symptoms were just too much for me and I couldn't work with them. Between the general fatigue, the cramps and diarrhea I couldn't go into the office. It makes it hard for me to do basic things like cooking and cleaning, so unfortunately a lot of that falls on my wonderful wife. I think it's hard on her because she worries about me, and I also feel guilty for putting her through this. The both of us decided to see a therapist individually to talk about it and try to cope with it all and it's been a great help.
Posted on 8/20/20 10:34 PM
This is my experience too, for what it's worth.
The guilt of the strain I put on my husband is real. It's almost too much to bare sometimes.
Posted on 8/27/20 5:05 PM
@Caesar @Paulboo I agree with you both. The diarrhea and fatigue just wipes me out and I'm of no help at all to my family. I feel so awful about it. I've had to give up a lot of things that I loved doing because I just don't have the energy for it. My quality of life has really suffered. At least I know now I'm not alone in feeling like this.