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Stem Cell Transplant for Multiple Myeloma - search for information
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Somya.P
Community managerGood advisor
Somya.P
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Last activity on 08/31/2024 at 12:00 PM
Joined in 2023
198 comments posted | 4 in the Multiple myeloma Forum
7 of their responses were helpful to members
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Hello, @Jessie1564, how are you feeling today?
Thank you for sharing your story with us, and I'm very sorry to hear about your husband's diagnosis. Dealing with a diagnosis like multiple myeloma and considering a stem cell transplant can indeed be overwhelming, and it's incredibly courageous of you to reach out for support. I'll invite a few members of our community to weigh in on this topic and share their experiences:
@glennadunn1226 @Harstev @MaHeck @shellmark @Counselor71 @Lods10.10.2023 @Chloegirl @Samsthetwin @Sleelee68 @EMHart @Paso906 @totopeg @RJOHNIGARN1 @Mikepeele @LadyDJP @Ahallphd2017 @Csuefra @Theobaldsherry @MIMIdwina @VirginiaGlover @Chuckkelly @grandpapaul @Randrericson @sleaw1961 @nicholassallie @Deannaw @LupePhillips @Kelly1982 @Ladybug310 @WayneC @Janice69 @Mam982000 @joeblack445 @kgraumann @JanelleS @Sharonjones1109 @sshina @Nannydeb @Blucky @Wgreen1990 @Desg1928 @MaryLillian @cornerpocket1987yahoo.com @sharoncadwell34 @realtor @Ldscimeme @dadachip @Ynetta @Anneelise @Ozarkpd120 @Donnierae @Olveraangel @MPL54! @Kat1948 @LostSock @Vc4him2000 @Christoina007 @cnapolillo
Have you undergone a stem cell transplant or have any resources you found particularly helpful? Your input could make a significant difference in this person's journey.
Thank you so much and take care,
Somya from the Carenity team 🌼
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DCline3dogs
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
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DCline3dogs
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
See the best comment
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Jessie1564
Jessie1564
Last activity on 12/18/2023 at 6:59 AM
Joined in 2023
6 comments posted | 5 in the Multiple myeloma Forum
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Hello Carenity,
I wanted to reach out to share a bit of my personal journey and seek insights from those who may have gone through a similar experience. My husband was diagnosed with multiple myeloma last year, and our healthcare team recently recommended a stem cell transplant as part of his treatment plan. We've been doing our research, attending appointments, and gathering as much information as possible, but as you can imagine, it's a lot to take in.
I wanted to reach out to this community for support, advice, and perhaps some shared experiences regarding the stem cell transplant procedure. Has anyone had it and would be willing to share their experiences? As well as any tips you might have.
I'm particularly interested in understanding the recovery process, managing side effects, and any lifestyle adjustments that were beneficial. If anyone has recommendations for reputable resources or support groups specifically focused on stem cell transplant and multiple myeloma, please feel free to share.
Thanks