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Patients Multiple myeloma
Newly diagnosed: Can you share any advice?
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Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Joined in 2020
Hi @CEstevez77, thank you for opening this discussion. Getting diagnosed with a rare condition can be overwhelming. Let me tag some other members who can possibly share with you.
Hi everyone,
Can you share any advice with @CEstevez77? Is there anything you would have liked to known when you were first diagnosed with multiple myeloma?
@tammyru2005 @kugie5 @JerryL65 @Joshleen @kellykat38 @Icemanwess @tpk777111 @Haledrive @nikat315 @sharkna @wildfry @Peacock @DickHall @Carolynfranz @dianneb_Eagle7 @CindyFrench @Margiella @rickallen2022
Take care,
Courtney
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Courtney_J, Community Manager, Carenity US
sharkna
sharkna
Joined in 2021
I have MGUS for 2 years now. The entire time I have discomfort in my upper back which is unusual. I treat with ice and heat and Gabapentin. Anyone else with MGUS experience this?
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DCline3dogs
DCline3dogs
Joined in 2024
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
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DCline3dogs
DCline3dogs
Joined in 2024
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
See the best comment
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CEstevez77
CEstevez77
Joined in 2021
Hi,
I was recently diagnosed with multiple myeloma and I don't know a lot about what can I do or how to deal with it. I'm scared and confused.... Anyone out there that can give me some advice?
Thanks