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How do you manage your energy on difficult days?
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Joushoagroor527
Joushoagroor527
Last activity on 10/23/2026 at 4:15 PM
Joined in 2021
1 comment posted | 1 in the Multiple myeloma Forum
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Most of the time I have more energy in the morning so that's when I try to do chores. When I tire I rest.
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Geshayvavong087
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
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Geshayvavong087
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
See the best comment
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Razar.M
Community managerRazar.M
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Last activity on 10/23/2026 at 4:25 PM
Joined in 2026
70 comments posted | 2 in the Multiple myeloma Forum
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Hi everyone 💙
For many people living with multiple myeloma, fatigue can be much more than simply feeling tired.
It may make everyday things like cooking, shopping, cleaning, going out or even concentrating feel much harder than usual.
Some days may be relatively good, while on others your energy can disappear much faster than expected.
That can make planning difficult. You may want to stay active and independent, but also need to listen to your body and rest.
💬 We’d love to hear about your experience:
@Prayheamel421 @Bogleakur6 @Bookebleng4 @Playploufai083 @Joushoagroor527 @Yooyayvoa33 @Dairoma78 @Loojohaprout @4Yudropeyt @Greyteat34 @5Leadoufeeck @Hooplepleesh723 @Yefray839 @Niwooyeefloar @913Thucheydayt @Noojeabrafoo101 @50Chaproon @Daidret2 @Paytruprash64 @Shaifreegleang @Soasteapoaces320 @Lekooheys2 @02Coodugleepreck @Chayrear36 @6686Vouhealock @Plestoon454 @9Croojavou @9045Shaileel @Louflun426 @Hootick59 @Booshahaish5 @Teakoul @Jopeyl92 @Crosung3240 @696Shoufrun @Deevonoar128 @Clooseethan5697 @3Flugroock @Neadairur839 @522Dayliblock @Shouchong67 @Playtraystack3 @Thoudrayfreyreyr28 @Caipail814 @Theacomout6 @Pleydoablees354 @Godraywail2 @Voucraydoock9353 @658Joastecrosh @Woahoaveysin049 @Drearees6305 @Flomopruroat5 @Meetes79 @Muweafut935 @Taysheygoafreyn270 @162Predigreyck @2Geystish @Sogeyn300 @571Kuprooroul @Wavelet37 @Dridrudreat58 @81Haycleat @Jeestesh8503 @Beyjeyn4 @389Toocracut @0Wayyireesh @231Broobousheck @863Frithaysh @Preeboos896 @Teakoul713 @Flotoyoack1512 @116Clofritail @Thishir53 @3Keaploon @Praikoa85 @Doasaibeys63 @Traybrait82 @78Frechouyos @Breygraiwea4 @Vaydeyl8 @Beesishil @Hivail90 @Pruploos4 @Croucroacrays578 @0Plovos @Traibloumesh193 @Glayshadoshin0174 @Rookuglung655 @Scotland9636 @Chamomile5522 @Pichaivadrool3980 @Voleedrer3486 @Thoucloastebree2633 @Hostaiveegloal185 @Grustour0360 @Friween9622 @Nuploal98 @Wuheas9 @3Moocisootack
Sometimes the hardest part of fatigue is that other people cannot see it.
What do you wish people understood about living with multiple myeloma fatigue?
With care,
Razar from the Carenity team 💖