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  • What symptoms and complications would you want to get rid of?
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Living with lupus

What symptoms and complications would you want to get rid of?

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avatar Lee__R

Lee__R

Community manager
05/05/2019 at 12:00 AM

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avatar Lee__R

Lee__R

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Last activity on 04/03/2020 at 5:04 PM

Joined in 2018


1,336 comments posted | 37 in the Living with lupus group

2 of their responses were helpful to members


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For World Lupus Day - May 10, 2019 - Carenity listens to your voice: 

Lupus has various symptoms and complications, some of which are more easily managed than others.

Comment and discuss the lupus symptom or complication that you wish you could get rid of.

 

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avatar exit

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05/24/2019 at 5:36 PM

Flares for sure.  I haven’t noticed whether it’s helped with the migraines.  We’ve had some bad weather and I’m still getting them but I’m suspecting it has to do with the changes in the barometer.  I would think it might help with those too though! Right now I’m take 2 pills twice a day.  I got the standard process brand.  I’m almost out of those so I’m going to try the liquid drops because my chiropractor says it’s considerably less expensive to buy it that way.  I don’t know the dosage on the drops.  I’ll let you know next week when I purchase them and try it out.  


What symptoms and complications would you want to get rid of? https://www.carenity.us/forum/other-discussions/living-with-lupus/what-symptoms-and-complications-would-you-want-to-get-rid-of-947 2019-05-24 17:36:25
avatar exit

Unregistered member

05/24/2019 at 6:26 PM

@Beckisue Gurl please, 🤗 we've got you covered on this site.  And you know what is so special is that you WILL, find emotional support.  Our ", Monitor" our kind of guidance counselor has great suggestions as well and will keep us on track 😁.  ( Thank you by the way) I  truly cannot access your information, please forgive me sir.

Putting your self outhere can be very intimidating especially your story but I know you will be able to connect in a correct and healthy support plan. 

God bless and let's talk soon. 🙏. 

Let's keep in touch with each other, could be fun. Haha 🙌


What symptoms and complications would you want to get rid of? https://www.carenity.us/forum/other-discussions/living-with-lupus/what-symptoms-and-complications-would-you-want-to-get-rid-of-947 2019-05-24 18:26:14

avatar jasmine1092

jasmine1092

05/25/2019 at 10:27 PM

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avatar jasmine1092

jasmine1092

Last activity on 11/16/2023 at 1:34 AM

Joined in 2019


155 comments posted | 31 in the Living with lupus group


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@Rob_M thank you Rob. That would be great. If it calms the flares and the pain, that is what I need. I have heard so many mixed results when it comes to CBD. So thank you for sharing yours.


What symptoms and complications would you want to get rid of? https://www.carenity.us/forum/other-discussions/living-with-lupus/what-symptoms-and-complications-would-you-want-to-get-rid-of-947 2019-05-25 22:27:31

avatar jasmine1092

jasmine1092

05/25/2019 at 10:30 PM

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avatar jasmine1092

jasmine1092

Last activity on 11/16/2023 at 1:34 AM

Joined in 2019


155 comments posted | 31 in the Living with lupus group


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@Beckisue as @naturalremedygurl‍ said I think you can at least find some emotional support here. I know what you mean... having that person to share... but let me tell you sometimes that person makes you feel worse because they cant understand and cant always listen and empathize. Try finding emotional support here, maybe join an in person support group, and of course your animal will also help.

 

The pins and needles are the wors . How long have you been on gabapentin?


What symptoms and complications would you want to get rid of? https://www.carenity.us/forum/other-discussions/living-with-lupus/what-symptoms-and-complications-would-you-want-to-get-rid-of-947 2019-05-25 22:30:08
avatar exit

Unregistered member

05/25/2019 at 10:55 PM

Jasmine1092

try to start with the standard process brand.  They call it hemp oil.  It’s in a pill form.  I started with 4 per day 2 morning 2 night. They are very high quality.  I’ve heard you need to be careful with the quality to get the best results.  I’ll let you know next week about the liquid form to See if the results are equally as good.  You might try to go through a local chiropractor bc they typically know which brands get the best results 


What symptoms and complications would you want to get rid of? https://www.carenity.us/forum/other-discussions/living-with-lupus/what-symptoms-and-complications-would-you-want-to-get-rid-of-947 2019-05-25 22:55:35
avatar exit

Unregistered member

05/27/2019 at 2:55 AM

@jasmine1092 hey y'all, today has been a difficult one.  I have tried at least 5 times already to answer your questions and give and get some help. Just one of those days so I'm just gonna roll with the punches.

For my CBD needs which I have to have, I use 2 different companies.

Prana, and Trulieve.

Prana:  A compelling company with a special vision.  You see I had the pleasure of meeting the CEO and his family several years ago and I was instantly intrigued.  This company is driven by people who are passionate about wanting to provide better natural products.  Their hope is to introduce products that are natural and help the body heal itself. They have also taken a different approach with their website.  They have launched a community program called Act Now where their customers can speak with a medical professional about their products and how to use them specifically for their needs.  I know their products work and are what they say they are. I especially love the U-Thrive.  It provides energy and promotes a better sense of well being emotional for me anyway.  After just 2 days I could tell a difference.  In 30 days I was feeling much better.  Broccoli sprout extract, green tea, and circumin, those 3 ingredients and you will be on the road to a healthier way of living.

Trulieve:  Now that medical marijuana is legal in Florida, this is my go to.  I have been telling my husband that I wanted some CBD water and Trulieve came out with some water soluble drops. YIPPEE!!! 

I have something to drink all the time and I'm not a big fan of water.  Because of my migraines I can't have citrus so making water taste good has been a challenge to say the least...  Now I can have a refreshing glass of CBD water and can use as much or as little as I need.

This new form of CBD is called Nano technology and is extremely potent.  I have been using it for 3 days now and I love it.

It comes in 2 different types.  The ratio per bottle is 8:1 for both.  Either CBD 8: THC 1 or THC 8: CBD 1.

These drops or Tincture can be used in food, a drink or simply placed under your tongue if you prefer.  

I sincerely hope that this information will be a stepping stone for a better kind of healing and living.

I truly am thankful for this site and to be able to pass on and share what I have learned from trial and error over the past few years.

Thank you all for your help and kind words. And a special prayer for who are in need.

God bless and have wonderful evening. 🙏

 

 


What symptoms and complications would you want to get rid of? https://www.carenity.us/forum/other-discussions/living-with-lupus/what-symptoms-and-complications-would-you-want-to-get-rid-of-947 2019-05-27 02:55:57
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