Klippel-Trenaunay-Weber syndrome
Forum

Current topics:

• - How do you manage blood pressure as you get older?
  Hi everyone, My blood pressure has been a little higher than my normal ranges ~116/76 -  126/ 82. Has anyone else experienced this as they have aged? How do you manage your blood pressure as you ge
• - What is your cardiovascular diagnosis? Let's share!
  Hello everyone, How are you today? I've opened this discussion so that members can share the story of their cardiovascular conditions! What type of cardiovascular condition do you have? When were
• - Overcoming anxiety after a heart attack
  Hi everyone, I'm recovering from a heart attack I had last month. Fortunately I was at home when it happened with my husband who immediately called 911. They gave me a stent in the wrist within 90 mi

Current topics:

• - Have you undergone surgery for your cardiovascular condition?
  Hello everyone, Do you have experience with any surgery or procedures for a cardiovascular disease or condition? If so, what condition was the surgery for and what/how was the procedure? How has the s
• - Have you used the MYOMO robotic arm rehab device after a stroke?
  hi everybody i have very exciting news hungarian scientists are working on a new medication for spasticity good luck everybody and i wish you all a speedy and amazing recovery anybody used myomo ro
• - Short of breath with only slight exertion.
  any remedies?

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha

Current topics:

• - What natural herbs or supplements have you tried for painful joints?
  Hello Carenity members, I have had numerous surgeries on my clavicle (in fact, I have the first ever done surgery on my clavicle and I am in some medical books - have basically very minimal of my ori
• - Getting mobile when you cant move
  Any tips on regaining mobility.just getting back on your feet has so many challenges looking for ideas and support on this topic..
• - Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome
    Delphine's testimonialYears of diagnostic uncertainty facing Ehlers-Danlos Syndrome    When I was a child, I was already in pain. Back pain, stomach pain. I thought it was the same for everyon