Hyperplastic polyposis syndrome
Forum

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha

Current topics:

• - Hair Loss
  Has anyone experienced severe hair loss after their diagnosis? My hair is falling out in the shower and after I brush it, more than ever. It is becoming so thin and lifeless. It is very depressing for
• - What is your experience with IBS?
  I have been living with IBS since 2010 and it is really hard too in take milk products like cheese mayonnaise, any greasy stuff like hamburger's etc. I get to be very frustrated that you don't know wh
• - Cryptogenetic cirhiorros - migraines, enlarged liver and spleen, no appetite, and restless sleep
  I have cryptogenic cirrhosis of the liver which is from ulcerative colitis and stage 3 renal failure. Needless to say I also suffer with chronic back pain and I go to pain management but with my liver