Patients Digestive tract
Hair Loss
- 205 views
- 26 times supported
- 29 comments
All comments
Go to the last comment
Lee__R
Community managerGood advisor
Lee__R
Community manager
Last activity on 04/03/2020 at 5:04 PM
Joined in 2018
1,338 comments posted | 6 in the Digestive tract Forum
2 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
-
Friend
-
Top chef
@Kristina_M, I would recommend joining the groups of conditions that you think this topic would be related to and posting the discussion also there, such as the "Living with Crohn's" and "Living with Depression, Anxiety, and Mental Disorders"...
There are several discussion about hair loss in the Multiple Sclerosis and Lupus forums, but I think your post is separate from that because those are specific to the MS and Lupus conditions, but I would be happy to provide you with those links.
Lee__R
Community managerGood advisor
Lee__R
Community manager
Last activity on 04/03/2020 at 5:04 PM
Joined in 2018
1,338 comments posted | 6 in the Digestive tract Forum
2 of their responses were helpful to members
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Explorer
-
Friend
-
Top chef
Hello members,
I hope you do not mind me tagging you, but does anyone have any input, advice, or experience to share with @Kristina_M in regard to hair loss with IBD / IBS?
@Lhamo62 @Twiggi @Fjewell @Katontherock @Nicole21993 @Magmil84 @Krean2783 @tbintliff @lupus38 @Kelletanner @Kathy13 @wlkfree @Cford512 @Steve72 @binxter @trinitydarling @Slawson @jam1394 @dorothy @samzim19 @SweetChantal @jtrussell @Lward67 @Memelynn @Arisuma @Southernboy @autumnjewel @MadelineMcKay @UCsince1996 @ElizabethBluhm @Whynow @Loriely @Hburket97 @Jenmcd619 @Saystro @Kathy3426 @Bren56 @Cclovescc @LucasDee @uskat007 @livenlaugh @Belfiore @Kelletanner @elisebmartin3 @Amethyst2 @Sissie @s1d934 @Desiwitibd @Samiam900
@mrjetson1990 @Userlevel6 @Caffoxinated_Mom @Jcarp231 @Laurag @cronky1! @memorex @cristalis @Lillian-21 @Girly1
Kristina_M
Good advisor
Kristina_M
Last activity on 05/15/2020 at 6:45 PM
Joined in 2018
36 comments posted | 10 in the Digestive tract Forum
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Committed
-
Explorer
-
Friend
@Lee__R thank you. I will repost in those discussions and if you could provide me with those links as well!
Unregistered member
I did have hair loss when things were out of control, but I attributed that to the prednisone I was on at the time.
Unregistered member
Hello @Kristina_M . I have IBD (Crohn's disease to be exact) I did experience hair loss after becoming really sick and having depression. I was on a lot of medications so that has changed how my hair was doing. I had to start being more proactive with my hair. So before I only had to trim my ends every 6 months or so and that went down to about 3. If I tried to wait I would experience large amount of shedding. I'm talking the size of a gerbil amount of shedding. My hair was thinning and it wouldn't hold moisture. My hair was always dry no matter what I did. I had to start doing scalp treatments and using Jamaican Black Castor oil to help my hair grow back and only using natural products. I had to put less stress on my hair so no brushes or ponytails. And I started doing conditioning treatments every week. I do have psoriasis too so I was given medication to help with all the new found flakes in my hair. It is starting to grow back and get to where it was before but it may or may not get back to where it was. I hope it helps 😁
Kristina_M
Good advisor
Kristina_M
Last activity on 05/15/2020 at 6:45 PM
Joined in 2018
36 comments posted | 10 in the Digestive tract Forum
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Committed
-
Explorer
-
Friend
@Steve72 oh boy. I just started prednisone, I hope it doesn't get worse.
Kristina_M
Good advisor
Kristina_M
Last activity on 05/15/2020 at 6:45 PM
Joined in 2018
36 comments posted | 10 in the Digestive tract Forum
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Committed
-
Explorer
-
Friend
@jam1394 wow very similar to me. Thank you for this input. I have seborrheic dermatitis (bad dandruff) as well so I just started using shampoo for it but it tends to make my actual hair feel worse. what kind of conditioning treatments do you do? Are your Crohn's disease and psoriasis under control now? Did you take any natural supplements? What medication for Crohn's are you on if you don't mind me asking? Thank you so much for your help!
Unregistered member
@Kristina_M hopefully you can keep the dose low. For me it was the only thing that kept things at a dull roar until Humira was approved for Crohns in March 2007. I was on prednisone for over 2 yrs.
Unregistered member
@Kristina_M i'm glad I could help. My doctor says that i'm an a psuedo remission. So my intestines have healed but I still have the IBD symptoms as well as inflammation in my soft tissue. The Crohn's itself and trying to treat it has caused other issues that i'm currently dealing with such as arthritis and problems with my spine and my lungs. I normally use a moisturizing deep treatment by Shea moisture one week and then a cholesterol treatment another. I have fine curly hair so that is what works for me. I take hemp oil for chronic migraines but no other supplements besides that. The medications I take are Remicade, sulfate, dicyclomine, acetaminophen (one type with codeine one for arthritis), birth control, azathioprine, Amitriptyline, bevespi, flucinoide, xyzal, hemp oil, and pro air in emergency.
Kristina_M
Good advisor
Kristina_M
Last activity on 05/15/2020 at 6:45 PM
Joined in 2018
36 comments posted | 10 in the Digestive tract Forum
Rewards
-
Good Advisor
-
Contributor
-
Messenger
-
Committed
-
Explorer
-
Friend
@Steve72 oh okay that makes sense. I am on 10MG twice daily for 1 month. Did you get really sick physically (cold, flu like symptoms) while you were on it? I already feel like I’m getting some sort of respiratory virus and have to go to the doctor today. But I’m glad you got approved for humira and I hope it is working out for you. Thank you for your input ❤️
Give your opinion
Members are also commenting on...
Articles to discover...
02/12/2019 | Advice
Photo Testimonial: Irritable bowel syndrome prevents people from living
11/29/2024 | Nutrition
11/25/2024 | News
11/23/2024 | News
11/18/2024 | News
Drugs and libido: Which treatments can affect your sexual desire?
11/08/2024 | Advice
Subscribe
You wish to be notified of new comments
You have been subscribed
Kristina_M
Good advisor
Kristina_M
Last activity on 05/15/2020 at 6:45 PM
Joined in 2018
36 comments posted | 10 in the Digestive tract Forum
Rewards
Good Advisor
Contributor
Messenger
Committed
Explorer
Friend
Has anyone experienced severe hair loss after their diagnosis? My hair is falling out in the shower and after I brush it, more than ever. It is becoming so thin and lifeless. It is very depressing for me as I am so young and my hair used to be a great feature of mine and made me confident. Not anymore. I feel like these diseases are just stripping me from everything that was once mine. I went to a dermatologist and they said it is basically from malnourishment and stress, so there’s really no treatment until I get my disease and stress under control. Does anyone have any advice or suggestions? @Lee__R can you help generate this discussion as it may apply to more than just people with digestive disorders (IBD, celiac, depression, stress, anxiety, major life event, etc.)