Patients Focal dystonia
Posted on 9/23/19 6:58 PM
I just finished my second round of botox injections for my focal dystonia I also have tremors. The first round I was in so much pain before I got the shots I was in tears did not know how I was going to work with the pain. It took 3 1/2 weeks and the pain was 98% gone then about a week or 2 before u can get your next round I started having intermittent pain but nothing horrible. I went in got my second round and two to 3 weeks after I was really bad with pain couldn't sleep or anything but I'm now at work 3 1/2 again and it is really good. It's such a relief to not have that pain or the tremors but I'm scared what the botox will do over long term use and wondering if it will eventually not help. I dont know what I would do if nothing helped .
Posted on 9/24/19 8:03 PM
What part of your body does the focal dystonia affect?
Posted on 9/25/19 6:18 PM
My neck Plus I have head tremors
Posted on 9/26/19 8:11 PM
@russode I am dealing with focal hand dystonia. Doctors and experts don't know what to do with this one.
Posted on 9/26/19 8:14 PM
Posted on 9/27/19 9:50 PM
@russode it's a bummer...
Posted on 10/11/19 10:26 PM
@russode how old old are you if you don’t want me asking. I first starting getting Botox shots when I was 22. Did it for about 2 years every four months.
Posted on 10/12/19 4:22 AM
Posted on 10/12/19 7:26 AM
It’s such a trip because since they can’t just give you another dose right away and have to wait at least 3 months. At least that’s what they told me. As far as the long term effects I don’t think there is any proof or research that shows that there are any severe issues. I have heard of people even getting shots on the front side of the neck. I remember my fear would be swallowing food since I had read something about people haven’t difficulty. How long have you had the dystonia. I’m 28 now. Diagnosed when I was 22.