Do you use Botox injections for your dystonia?

What part of your body does the focal dystonia affect?

My neck  Plus I have head tremors

@russode I am dealing with focal hand dystonia. Doctors and experts don't know what to do with this one.

@russode it's a bummer...

@russode how old old are you if you don’t want me asking. I first starting getting Botox shots when I was 22.  Did it for about 2 years every four months.   

It’s such a trip because since they can’t just give you another dose right away and have to wait at least 3 months.  At least that’s what they told me.   As far as the long term effects I don’t think there is any proof or research that shows that there are any severe issues. I have heard of people even getting shots on the front side of the neck.  I remember my fear would be swallowing food since I had read something about people haven’t difficulty. How long have you had the dystonia.  I’m 28 now.  Diagnosed when I was 22.  

I have had the head tremors and my head being pulled in a direction for at least 10 years now but was told nothing could b done and not diagnosed until this year.  When I was in so much pain was in tears they finally sent me to a neurologist who diagnosed me   Do u feel like the shots are working for u the same level as when u first started getting them?  U r young to have that to deal with.