Back

Patients Dystonia

How do tremors impact your everyday life?

126 views
4 times supported
11 comments

Lee__R

Community manager

04/25/2019 at 3:23 AM

Good advisor

Lee__R

Community manager

Last activity on 04/03/2020 at 5:04 PM

Joined in 2018

1,336 comments posted | 20 in the Dystonia Forum

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend
Top chef

View profileView Add a friendAdd Write

Hello,

Tremors are a common symptoms experienced by those with focal dystonia, which can impact many daily tasks.

What part of your body mostly suffers from tremors? Which tasks do you find the most difficult as a result of the tremors? Do you have any modifications or tips to help perform those tasks despite the tremors?

Please share and discuss

All comments

Go to the last comment

Lee__R

Community manager

04/29/2019 at 3:54 AM

Good advisor

Lee__R

Community manager

Last activity on 04/03/2020 at 5:04 PM

Joined in 2018

1,336 comments posted | 20 in the Dystonia Forum

2 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend
Top chef

View profileView Add a friendAdd Write

Hello members. Hope you do not mind me tagging you in this discussion. Feel free to comment, share, and discuss with each other.

@Raine061‍ @Slj42‍ @Dearluly‍ @Lin123‍ @Foxyfoxm‍ @mvmentme‍ @Gloria6913‍ @Dyston!a‍ @Armor2‍ @Plantsorpills‍ @maritootles‍ @rooks71‍ @Janine‍ @sneakysideeye‍ @tzap467‍ @Rseeya‍ @Chi910‍ @ITGuy1‍ @Cherie‍ @Syrina‍ @Lanne803‍ @Amsluvsfun‍ @BP‍ @Jdsbruce‍ @BIGtGotC‍ @Lsherrer‍ @dennisd51‍ @barneydl‍ @Emndarmic‍ @2skatermom‍ @help11‍ @donhop‍ @Nicholson13‍ @Donnsi‍ @Judy747‍

How do tremors impact your everyday life? https://www.carenity.us/forum/dystonia/living-with-focal-dystonia/how-do-tremors-impact-your-everyday-life-921 2019-04-29 03:54:18

Armor2

04/29/2019 at 4:20 AM

Good advisor

Armor2

Last activity on 07/14/2024 at 8:22 PM

Joined in 2019

27 comments posted | 12 in the Dystonia Forum

5 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Explorer

View profileView Add a friendAdd Write

My head tremors due to cervical dystonia causes me to avoid haircut because I feel everyone is watching me. My best way of dealing with this is to go right after a massage.

How do tremors impact your everyday life? https://www.carenity.us/forum/dystonia/living-with-focal-dystonia/how-do-tremors-impact-your-everyday-life-921 2019-04-29 04:20:21

Foxyfoxm

04/29/2019 at 4:42 AM

Good advisor

Foxyfoxm

Last activity on 05/23/2019 at 10:37 PM

Joined in 2019

15 comments posted | 15 in the Dystonia Forum

1 of their responses was helpful to members

Rewards

Good Advisor
Contributor
Explorer

View profileView Add a friendAdd Write

@Armor2 Luckily my hairdresser has been cutting my hair since I was 12 and she comes to my house for cuts/color so I just hold my head as straight as I can and it’s usually still cut a bit crooked but it’s ok bcuz it goes with my neck lol... and yes humor gets me thru a lot..

Shame on them.. And let them stare.. we all have something I feel whether it shows on the outside or is on the inside..

How do tremors impact your everyday life? https://www.carenity.us/forum/dystonia/living-with-focal-dystonia/how-do-tremors-impact-your-everyday-life-921 2019-04-29 04:42:32

Jdsbruce

04/29/2019 at 9:55 PM

Jdsbruce

Last activity on 11/12/2024 at 4:36 AM

Joined in 2019

5 comments posted | 4 in the Dystonia Forum

Rewards

Explorer

View profileView Add a friendAdd Write

I try to ignore them which is extremely difficult because I'm a cashier at Walmart. Beyond that, they exhaust me when coupled with MS & terrible allergies. When at worst, they embarass me and cause plenty of pain.

How do tremors impact your everyday life? https://www.carenity.us/forum/dystonia/living-with-focal-dystonia/how-do-tremors-impact-your-everyday-life-921 2019-04-29 21:55:54

Armor2

04/30/2019 at 4:11 PM

Good advisor

Armor2

Last activity on 07/14/2024 at 8:22 PM

Joined in 2019

27 comments posted | 12 in the Dystonia Forum

5 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Explorer

View profileView Add a friendAdd Write

I also find that my tremors become worse when I am tired, or spend anytime at a computer even though I have tried to adjust the height of the chair, the tilt of the monitor anything to see if it works. I retired from work because I couldn't put up with the pain anymore it was taking over my life.

How do tremors impact your everyday life? https://www.carenity.us/forum/dystonia/living-with-focal-dystonia/how-do-tremors-impact-your-everyday-life-921 2019-04-30 16:11:01

Jdsbruce

04/30/2019 at 9:56 PM

Jdsbruce

Last activity on 11/12/2024 at 4:36 AM

Joined in 2019

5 comments posted | 4 in the Dystonia Forum

Rewards

Explorer

View profileView Add a friendAdd Write

I'm truly sorry to hear that, Armor2. I try to push away thoughts of not being able to work. If that happens, I'll lose custody of my 8 year old. Her father (ex-husband) , while not physically abusive, is very detached from her emotionally.

How do tremors impact your everyday life? https://www.carenity.us/forum/dystonia/living-with-focal-dystonia/how-do-tremors-impact-your-everyday-life-921 2019-04-30 21:56:26

Armor2

05/01/2019 at 5:22 PM

Good advisor

Armor2

Last activity on 07/14/2024 at 8:22 PM

Joined in 2019

27 comments posted | 12 in the Dystonia Forum

5 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Explorer

View profileView Add a friendAdd Write

I felt that was happening with your situation, and my heart goes out to you. It is tough to know you have to work with no other options and to have CD on top of that.

How do tremors impact your everyday life? https://www.carenity.us/forum/dystonia/living-with-focal-dystonia/how-do-tremors-impact-your-everyday-life-921 2019-05-01 17:22:25

Dylsmom

07/24/2019 at 5:14 PM

Dylsmom

Last activity on 08/15/2020 at 1:07 AM

Joined in 2019

1 comment posted | 1 in the Dystonia Forum

Rewards

Explorer

View profileView Add a friendAdd Write

Over a year ago I was noticing my head would always want to go to the left or up. It's very painful and distracting to me and those around me. Last July I was diagnosed with Cervical Dystonia. Botox has not helped, Lidocaine patches do not help. There's no pain medication available due to those who have abused them. Some days, I don't know how I can keep going.

How do tremors impact your everyday life? https://www.carenity.us/forum/dystonia/living-with-focal-dystonia/how-do-tremors-impact-your-everyday-life-921 2019-07-24 17:14:34

achard

07/24/2019 at 7:28 PM

achard

Last activity on 11/07/2021 at 2:59 AM

Joined in 2019

2 comments posted | 1 in the Dystonia Forum

Rewards

Committed
Explorer

View profileView Add a friendAdd Write

I have had better results with Xeomin than Botox. Botox helped at the beginning but not so much on further injections.

How do tremors impact your everyday life? https://www.carenity.us/forum/dystonia/living-with-focal-dystonia/how-do-tremors-impact-your-everyday-life-921 2019-07-24 19:28:27

Courtney_J

Community manager

08/12/2020 at 5:14 PM

Good advisor

Courtney_J

Community manager

Last activity on 08/08/2022 at 11:09 AM

Joined in 2020

1,339 comments posted | 5 in the Dystonia Forum

6 of their responses were helpful to members

Rewards

Good Advisor
Contributor
Messenger
Explorer
Friend

View profileView Add a friendAdd Write

Hello everyone,

How are you? Have you seen this discussion? emoticon cute

How does your dystonia impact your daily life? Have you had to change your daily routine or the way you do certain tasks ? What have you done to adapt?
@russode‍ @Gigicoughlin‍ @CrystalGiles‍ @Aprilmariejack‍ @Cathymls‍ @Cat0919‍ @Mom23ms‍ @Awatchman‍ @Paula.Schmidt‍ @Bagohlke‍ @trasaba1126‍ @Charlotte‍ @abruce80‍ @Kari0201‍ @nashsher59‍ @mtlisa‍ @Elviscd1‍

Feel free to share here!

Take care,
Courtney

See the signature

Courtney_J, Community Manager, Carenity US

How do tremors impact your everyday life? https://www.carenity.us/forum/dystonia/living-with-focal-dystonia/how-do-tremors-impact-your-everyday-life-921 2020-08-12 17:14:23

Members are also commenting on...

Articles to discover...

07/26/2023 | Testimonial

Cervical Dystonia: “Medical profession thought I was making it all up, I couldn’t go back, so for the next 17 years I just tried to manage on my own!”

10/25/2018 | News

Half Of Women At Risk Of Dementia, Parkinson's, Stroke: Study

09/21/2018 | News

Study: Air Pollution Linked To Higher Risk Of Dementia

07/07/2025 | Nutrition

Inflammation and diet: Which foods to avoid and what to eat instead

07/05/2025 | News

Sun protection and chronic illnesses: How to stay safe in the sun

06/28/2025 | News

Screens and the brain: What are the risks of overuse and how can you protect yourself?

06/21/2025 | News

Women's health: Why is medical research still falling short?

06/14/2025 | Advice

Can you train your brain to feel happier, scientifically?

How do tremors impact your everyday life?

All comments

Give your opinion

What do you think about the Carenity Forum and community?

Help shape the future of Carenity!

How were you diagnosed?

Members are also commenting on...

Articles to discover...