How do tremors impact your everyday life?

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My head tremors due to cervical dystonia causes me to avoid haircut because I feel everyone is watching me.  My best way of dealing with this is to go right after a massage.

@Armor2 Luckily my hairdresser has been cutting my hair since I was 12 and she comes to my house for cuts/color so I just hold my head as straight as I can and it’s usually still cut a bit crooked but it’s ok bcuz it goes with my neck lol... and yes humor gets me thru a lot.. 

Shame on them.. And let them stare.. we all have something I feel whether it shows on the outside or is on the inside.. 

I try to ignore them which is extremely difficult because I'm a cashier at Walmart. Beyond that, they exhaust me when coupled with MS & terrible allergies. When at worst, they embarass me and cause plenty of pain. 

 

I also find that my tremors become worse when I am tired, or spend anytime at a computer even though I have tried to adjust the height of the chair, the tilt of the monitor anything to see if it works. I retired from work because I couldn't put up with the pain anymore it was taking over my life.

I'm truly sorry to hear that, Armor2. I try to push away thoughts of not being able to work. If that happens, I'll lose custody of my 8 year old. Her father (ex-husband) , while not physically abusive, is very detached from her emotionally.

I felt that was happening with your situation, and my heart goes out to you.  It is tough to know you have to work with no other options and to have CD on top of that.

Over a year ago I was noticing my head would always want to go to the left or up. It's very painful and distracting to me and those around me. Last July I was diagnosed with Cervical Dystonia. Botox has not helped, Lidocaine patches do not help. There's no pain medication available due to those who have abused them. Some days, I don't know how I can keep going.

I have had better results with Xeomin than Botox. Botox helped at the beginning but not so much on further injections.

Hello everyone,

How are you? Have you seen this discussion? 

How does your dystonia impact your daily life? Have you had to change your daily routine or the way you do certain tasks ? What have you done to adapt?
@russode‍ @Gigicoughlin‍ @CrystalGiles‍ @Aprilmariejack‍ @Cathymls‍ @Cat0919‍ @Mom23ms‍ @Awatchman‍ @Paula.Schmidt‍ @Bagohlke‍ @trasaba1126‍ @Charlotte‍ @abruce80‍ @Kari0201‍ @nashsher59‍ @mtlisa‍ @Elviscd1‍ 

Feel free to share here!

Take care,
Courtney