Focal dystonia Forum
Our forum dedicated to focal dystonia brings together patients and relatives of patients with focal dystonia. Let's discuss this disease of the nervous system together: symptoms, daily life, treatments... Let's exchange tips!
Ongoing discussions - Focal dystonia
Current topics:
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- I have dystonia and I struggle with the way people look at me
Hi everyone, I hope this post is in the right place. I have cervical dystonia and the longer it goes on, the more it impacts my daily life. I feel like people are staring at me. The people I meet t
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- How do tremors impact your everyday life?
Hello, Tremors are a common symptoms experienced by those with dystonia,and they can impact many daily tasks. What part of your body mostly suffers from tremors? Which tasks do you find the most diffi
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- What is your dystonia diagnosis story? Let's share!
Hello everyone, How are you doing? I thought I would open this discussion so we can get to know one another better! So, what is your dystonia story? When and how were you diagnosed? What type of dy
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Current topics:
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- Cervical Dystonia
Just read some about this and I Think this could be what's causing all my neck pain ect. Have to see if a doctor will listen to me. LostChild
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- CBD for muscle spasms?
Hello, has anyone had any success with CBD for muscle pain and spasm and twitches? If so, what dosage and brand? Is it vape, edible, or sublingual? I have tried vaping, I think it was 15 mg, but d
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- Do you use Botox injections? Do you inject botulinum toxin?
Hello members, Botulinum toxin injections are one of the major treatments for focal dystonia. Are you aware of this treatment? Have you had, or are your currently having, this treatment? If so,
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Current topics:
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- Cervical dystonia, worsening eye sight, mouth pain/discomfort
well after only recently finding out. I have this crazy condition, my Dr. is sending me on t another neurologist for some other problem’s, such as my eye sight getting much worse, abd they tell me m
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- Cervical Dystonia, but now nerve pain all over lower body?
Hi everyone. I have been diagnosed with cervical dystonia and the symptoms I have had have always been centered around the neck region. However, recently I have experienced nerve pain into my legs and
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- Do you suffer from painful or disabling involuntary muscle movements?
Hello, One of the main symptoms of focal dystonia is the appearance of involuntary abnormal movements related to the uncontrolled contraction of muscles. Do you or your loved one suffer from these i
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