What is the most frustrating or difficult aspect of living with fibromyalgia?

@Courtney_J  I think for me I struggle with the fact that no one can see fibromyalgia, so I feel like people look at me like I'm making it all up and I'm lazy. I miss the "old" me before this all started, I used to be active, I'd go running, I'd go out with my friends, I'd stay up late with my boyfriend, etc. I feel like my life is over in a sense. Nobody really understands unless they have an invisible illness.

@CharlieE YES! Everything that you said! My journey to a diagnosis was a nightmare, I had to basically FORCE my doctors to take me seriously and LISTEN to what I was saying. There is not enough awareness of fibromyalgia in the medical community and then the community at large!

It's so overwhelming. The unpredictably. I actually had cfs x2 years, age 14-16 was homebound from school. Somehow I had remission then disabled from work and school since 1992. I was very active, overachiever, had plans and goals I could almost touch. 

So it's frustrating. I've lost friends bc symptoms are unreliable, I can't afford expensive restaurants or disbelief of my conditions. 

I'm very blessed I've had excellent doctors and I'm thankful they know the truth and are very knowledgeable and supportive 🙏