Posted on 8/5/19 8:59 PM
I started Botox injections in July. Did not alleviate the pain in my neck. So discouraged I am at a total loss as to what to do next. Cervical dystonia has totally changed my life, can't do much of anything I have pain 24/7 without any relief. Lying down helps if I keep my head perfectly still.
Posted on 8/8/19 5:56 PM
I go to physical therapy twice weekly and it’s been worth every minute/dollar. Here’s the “regimen”.
moist heat for 10 min....Physical Therapist then does about 10 minutes of Myofascia Release on my head and neck , following that, Massage for my neck, shoulders and trapezoid muscles and then some time in the gym to work on my balance.
The massage really does wonders and I walk out without neck pain that lasts for two or three days...and then I go back! I don’t see terminating any part of PT for a long time, if ever.
No Botox for me.
Posted on 8/13/19 2:18 PM
14 days later....the only effect is right hand and right arm weakness. No effect on dystonic movements. Dr. notified. Next step?????
Posted on 8/16/19 11:36 PM
Has anyone else tried regular massages for your neck and shoulders?
Posted on 9/10/19 4:10 AM
@Awatchman what was the doctor's suggestion after learning the botox was unsuccessful on the dystonic movements?
Posted on 9/10/19 8:59 PM
The only suggestion he could give me was an anticholinergic. But this has a side effect of short-term memory loss. That will not work for me in my line of work. Back to the drawing board. Looks like brain and hand training for me, which I will do myself with the help of the Lord.
Posted on 9/18/19 3:06 AM
I am sorry to hear that @Awatchman... I would be curious to see about others possible success with natural or alternative treatments such as acupuncture/dry needling.
Posted on 9/19/19 3:56 AM
@Awatchman what about biofeedback? It’s worth exploring. Google neurofeedback as well as biofeedback.
Posted on 9/19/19 11:43 AM
Have you tried this or know anyone who has tried this? For the focal dystonia
Posted on 9/20/19 6:33 AM
I tried it and it helped. It helped me slow my nervous system down thru my breath, become more aware of stressors quickly and those two things alone help a ton. When I feel neck spasms/head tremors coming on I can usually control it to the point of stopping the spasms by focusing on my breath for a few minutes.