Topic of the discussion
Posted on 1/15/19 3:03 PM
Cancer patients should not be told to “fight” their disease because doing so puts them under “exhausting pressure”, Macmillan Cancer Support has said.
The charity warned that framing cancer in terms of a battle leaves patients feeling guilty for admitting fear and often prevents them from planning properly for their death.
Macmillan said thousands of sufferers were unnecessarily dying in hospital rather than their own home each year because of a “gulf in communication” towards the end of life. Experts last night called for a cultural change around cancer so patients no longer feel compelled to put on a brave face.
Research commissioned by the charity reveals nearly two-thirds of sufferers never talk to anyone about their fears of dying due to the pressure to see themselves as a “fighter”. Meanwhile, 28% reported feelings of guilt if they cannot stay positive about their disease.
Adrienne Betteley, an end-of-life care advisor at Macmillan, said: “We know that “battling” against cancer can help some people remain upbeat about their disease, but for others, the effort of keeping up a brave face is exhausting and unhelpful in the long-term."
The report said the pressure to stay positive and support people to “fight” cancer was one of the biggest barriers to holding conversations about dying, even in patients who had already received a terminal diagnosis.
“We need to let people define their own experiences without using language that might create a barrier to vital conversations about dying,” said Ms Betteley. “For health and social care professionals, there is often a fear that the person is not ready to talk about dying. We know, however, that making plans while receiving treatment allows people with cancer to retain a sense of control during an emotionally turbulent time.”
What do you think about this? Do you think it is time to change the language surrounding cancer? Many people on Twitter talked about how you "don't lose a battle against a heart attack" so why do we use this language with cancer?
Beginning of the discussion - 1/15/19Telling patients to 'fight' cancer puts them under pressure https://www.carenity.us/forum/cancer/living-with-cancer/telling-patients-to-fight-cancer-puts-them-under-pressure-686
Posted on 1/15/19 4:40 PM
Thank you for sharing. I think this is true for many conditions... chronic pain, depression, etc. When people tell you to fight it, they are meaning well, but the one suffering may take it different, as a feeling of lack of empathy or sympathy.
Posted on 1/15/19 4:45 PM
@whatistheissue Thank you for sharing!
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Posted on 1/15/19 6:13 PM
Your attitude and your feelings are affected by where you are on your cancer journey. When I am cancer free I am positive, I am happy. During my recent reoccurrence last year, I did everything I could to get better so I guess you could say I was positive but it felt like I was gritting my teeth and just struggling to get through the day at times. I resent it when they say someone "lost their battle with cancer". I agree we usually don't say that about any other diseases like kidney failure, heart disease, COPD ect. My focus is on being healthy, not fighting cancer. My life has to be more than my situation with cancer. It has to be about family, helping others and enjoying nature and music.
Posted on 1/23/19 9:14 PM
I think it depends on the person, as for my mother she says all the time that she won't let cancer beat her. We also celebrate little victories along with the big ones. Such as when she passed the 30 month prognosis she was given! So I think each person looks at it differently but at the end it comes down to the persons will to live and not give up!
Posted on 1/26/19 2:58 AM
@AlwaysME I love the idea of celebrating little victories! That seems like a great method of incorporating a good spirit. Thank you for sharing.
Posted on 1/26/19 2:59 AM
@mc1440 Thank you for sharing and I think that mindset is beneficial... that your life cant be just about cancer... that it has to be more than that. Thank you for sharing; I am sure someone will find your small advice very beneficial when they implement it.
Posted on 1/26/19 2:47 PM
Fighting is relentless. Found out on Sept. 2015. Now getting put on oral meds. I take one day at a time it helps to talk to people in the same boat that truly understand
Posted on 1/27/19 5:00 PM
@mc1440 thanks for your kind response.
Posted on 7/25/19 8:40 PM
@AlwaysME sorry cant believe it cones down to having a “will to live or not “, we are talking about Cancer not a cold.
I do believe your attitude on life , your personality, can help you live a better life, with or without cancer.