Atresia of small intestine
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Current topics:

• - What is your experience with IBS?
  I have been living with IBS since 2010 and it is really hard too in take milk products like cheese mayonnaise, any greasy stuff like hamburger's etc. I get to be very frustrated that you don't know wh
• - Cryptogenetic cirhiorros - migraines, enlarged liver and spleen, no appetite, and restless sleep
  I have cryptogenic cirrhosis of the liver which is from ulcerative colitis and stage 3 renal failure. Needless to say I also suffer with chronic back pain and I go to pain management but with my liver
• - Hair Loss
  Has anyone experienced severe hair loss after their diagnosis? My hair is falling out in the shower and after I brush it, more than ever. It is becoming so thin and lifeless. It is very depressing for

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @A

Current topics:

• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today? The pharmaceutical groups Pfizer (USA) and BioNTech (Germany), as well as Moderna (USA), announced last month that their vaccine candidates are around 94 and 95%
• - COVID-19: How do you feel today?
  Hello everyone, I've opened this discussion so we can share our state of mind during this period of isolation! Let's come here everyday to share how we're feeling! What is the best way to stay pos
• - COVID-19: Should we fear a second wave?
  Hello everyone, How are you doing today? As countries throughout the world are and have been coming out of lockdown and life is begining to return to "normal", many people and health authorities ha