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  5. Living with ankylosing spondylitis
  6. When were you diagnosed with AS? What were your symptoms?
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Living with ankylosing spondylitis

When were you diagnosed with AS? What were your symptoms?

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  •  4 comments

avatar Lee__R

Lee__R

Community manager
11/07/2018 at 11:55 PM

Good advisor

The common early symptoms of ankylosing spondylitis include pain that exists for more than three months and back pain and stiffness that worsens with immobility.

However, the age of onset and warning signs / initial symptoms of ankylosing spondylitis experienced can vary from person to person. 

What was your age when you experienced the onset of Ankylosin Spondylitis? 

What were the warning signs / early symptoms that made you seek out medical advice?

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avatar Lee__R

Lee__R

Community manager
11/28/2018 at 5:39 AM

Good advisor

Hello members, does anyone have any input? @Athijssen‍ @nomasAS‍ @fraskb‍ @rwilsonjr67‍ @Anjelkiss‍ @DuchyCT‍ @Edelweiss70‍ @Mbaulch‍ 


When were you diagnosed with AS? What were your symptoms? https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/what-was-your-age-and-symptoms-initially-exper-577 2018-11-28 05:39:58

avatar Athijssen

Athijssen

11/28/2018 at 2:49 PM

prolonged back and hip pain, multiple doctors and PT, Xrays etc   until finally one doctor suggesred AS and started looking for that specificly


When were you diagnosed with AS? What were your symptoms? https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/what-was-your-age-and-symptoms-initially-exper-577 2018-11-28 14:49:09

avatar Mbaulch

Mbaulch

12/04/2018 at 1:22 AM

i developed severe sacroilliac  and left sciatic nerve pain with severe weakness and shortness of breath.  After being told to start walking I told my doctor I had a nephew who had had AS,  He actually committed suicide at age 30.  I was tested for the gene and had an MRI that showed that my bones had already changed.

 

 


When were you diagnosed with AS? What were your symptoms? https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/what-was-your-age-and-symptoms-initially-exper-577 2018-12-04 01:22:18

avatar JTom4cats

JTom4cats

01/28/2019 at 6:10 PM

Good advisor

@Lee__R 

I experienced severe back pain in my mid-20's.  Worked thru that with Tylenol.  In my low 30's I had sciatic pain to the point I was bed-ridden for days at a time.  After seeing several orthopedic doctors I finally went to a Osteopath who did some investigating and determined I has AS.  Been seeing a Rheumatologist for many years and have been on Enbrel for almost 20 years 

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When were you diagnosed with AS? What were your symptoms? https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/what-was-your-age-and-symptoms-initially-exper-577 2019-01-28 18:10:56

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