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When were you diagnosed with AS? What were your symptoms?

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Lee__R

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11/07/2018 at 11:55 PM

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Lee__R

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The common early symptoms of ankylosing spondylitis include pain that exists for more than three months and back pain and stiffness that worsens with immobility.

However, the age of onset and warning signs / initial symptoms of ankylosing spondylitis experienced can vary from person to person.

What was your age when you experienced the onset of Ankylosin Spondylitis?

What were the warning signs / early symptoms that made you seek out medical advice?

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Lee__R

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11/28/2018 at 5:39 AM

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Lee__R

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Hello members, does anyone have any input? @Athijssen‍ @nomasAS‍ @fraskb‍ @rwilsonjr67‍ @Anjelkiss‍ @DuchyCT‍ @Edelweiss70‍ @Mbaulch‍

When were you diagnosed with AS? What were your symptoms? https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/what-was-your-age-and-symptoms-initially-exper-577 2018-11-28 05:39:58

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11/28/2018 at 2:49 PM

prolonged back and hip pain, multiple doctors and PT, Xrays etc until finally one doctor suggesred AS and started looking for that specificly

Mbaulch

12/04/2018 at 1:22 AM

Mbaulch

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i developed severe sacroilliac and left sciatic nerve pain with severe weakness and shortness of breath. After being told to start walking I told my doctor I had a nephew who had had AS, He actually committed suicide at age 30. I was tested for the gene and had an MRI that showed that my bones had already changed.

JTom4cats

01/28/2019 at 6:10 PM

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JTom4cats

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@Lee__R

I experienced severe back pain in my mid-20's. Worked thru that with Tylenol. In my low 30's I had sciatic pain to the point I was bed-ridden for days at a time. After seeing several orthopedic doctors I finally went to a Osteopath who did some investigating and determined I has AS. Been seeing a Rheumatologist for many years and have been on Enbrel for almost 20 years

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CDKennedy

Edited on 05/22/2022 at 10:09 PM

I am in the severe range now at 74 yrs old. I have found thru trial and error and getting older with SA, I sleep on my back because I can hardly turn to my side now. I also take 10 mg Melatonin. I didn't know it came in 20 mg! (Thanks ladyslipper 67) What has really help with my back pain, when in bed, is a large memory foam wedge. The large end is under my knees and my legs go down to the small end. It doesn't move when I sleep but then again I am not turning over back and forth. This takes the pressure off my back. I hope this helps someone.

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CDKennedy

Edited on 05/22/2022 at 10:09 PM

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