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Patients Ankylosing spondylitis

What is the future with spondylitis?

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mark48

05/13/2022 at 5:05 PM

mark48

Last activity on 05/13/2022 at 5:01 PM

Joined in 2018

17 comments posted | 14 in the Ankylosing spondylitis Forum

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Hello,

I would like to know how spondylitis evolve? With time, are we condemned to stop working? To take biotherapies? Do we all end up disabled?

Thank you in advance for your answers, I am worried about my future...

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JTom4cats

05/16/2022 at 7:04 PM

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JTom4cats

Last activity on 03/24/2025 at 12:27 PM

Joined in 2019

19 comments posted | 16 in the Ankylosing spondylitis Forum

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I was diagnosed in my mid 30's. I had it since my early 20's but the Doctors I was seeing at the time did not do the proper tests to zero in on what was really behind my symptoms. In my mid 30's I was thinking I was going to be dead by 50. I am 67 now. I retired almost 4 years ago, my choosing.

Find a good Rheumatologist, get some good anti-inflammatory drugs and stick with the plan. Your body and range of motion will dwindle in some aspects. I play golf 1-2 times per week and enjoy myself. I no longer swim very well, and I have given up high speed (high impact) sports like biking.

I have been on Enbrel for 20+ years. OK if you are commercial insurance, a huge cost if not. I'm lucky, I can afford it so far.

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Tom W - Food and Coffee

What is the future with spondylitis? https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/what-is-the-future-with-spondylitis-4371 2022-05-16 19:04:41

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CDKennedy

Edited on 05/22/2022 at 10:09 PM

I am in the severe range now at 74 yrs old. I have found thru trial and error and getting older with SA, I sleep on my back because I can hardly turn to my side now. I also take 10 mg Melatonin. I didn't know it came in 20 mg! (Thanks ladyslipper 67) What has really help with my back pain, when in bed, is a large memory foam wedge. The large end is under my knees and my legs go down to the small end. It doesn't move when I sleep but then again I am not turning over back and forth. This takes the pressure off my back. I hope this helps someone.

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CDKennedy

Edited on 05/22/2022 at 10:09 PM

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