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Patients Ankylosing spondylitis

Just diagnosed with AS - help

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Stofleekayl693

05/14/2018 at 9:52 PM

Stofleekayl693

Last activity on 09/26/2023 at 11:23 PM

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23 comments posted | 15 in the Ankylosing spondylitis Forum

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This is my first post so I would like to say hi to everyone. About 4 months ago I was diagnosed with AS. I had a gut infection about 4 years ago and slowly started getting more and more sever back pain. It continously worsened and finally went to see a doctor.

It was becoming so painful and the feeling of stiffness was very present. The doctor ran some tests, which came back positive for HLA B27 gene. An X-ray revealed narrowing of the vertebraes and fusing... The rehumatologist a week later did a detailed examination and then came the diagnosis of AS.

Currently, I am taking Naprozen and seeing a PT for exercises to correct or at least try to stop the curvature from worsening in my spine.

I am lost. Can anyone lend a caring ear and respond to how they were diagnosed, what symptoms they had, and what medications they have used to help the condition. Has anything worked?

I am hopeful somebody has a lending hand. Thank you for listening.

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Leadoufeeck69

05/17/2018 at 11:45 PM

Leadoufeeck69

Last activity on 07/01/2019 at 10:48 PM

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2 comments posted | 2 in the Ankylosing spondylitis Forum

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I am also new here. I would like to help but don't know how. I was diagnosed with ankylosing spondylitis 32 years ago it has been a long journey. Medicines are improving year-by-year. I am on Social Security and so my medicines are paid for. They run around $80,000 a year and I am in more pain today than when I began them. For your sake I have found more help through diet and exercise then with all of the medicine. Natural healing is the best way to go . Maybe in the future the medicines will get better. But I think diet and exercise will slow your diseases down.

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Tad F. House

Just diagnosed with AS - help https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/just-diagnosed-with-as-help-138 2018-05-17 23:45:44

Leadoufeeck69

05/17/2018 at 11:48 PM

Leadoufeeck69

Last activity on 07/01/2019 at 10:48 PM

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2 comments posted | 2 in the Ankylosing spondylitis Forum

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By the way, I not only have ankylosing spondylitis but psoriatic arthritis, rheumatoid arthritis and irritable bowel disease. All just one big bad case of autoimmune. I'm going to try to improve my body so that it can heal itself.

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Tad F. House

Just diagnosed with AS - help https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/just-diagnosed-with-as-help-138 2018-05-17 23:48:48

Stofleekayl693

05/20/2018 at 8:34 PM

Stofleekayl693

Last activity on 09/26/2023 at 11:23 PM

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23 comments posted | 15 in the Ankylosing spondylitis Forum

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Thank you Tad for your words of encouragement and your response.

What diet regimine or natural medicine so you take/follow?

Just diagnosed with AS - help https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/just-diagnosed-with-as-help-138 2018-05-20 20:34:10

8Nadruplay

10/05/2018 at 12:20 AM

8Nadruplay

Last activity on 01/06/2026 at 6:28 PM

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7 comments posted | 7 in the Ankylosing spondylitis Forum

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i have a poor appetite and abdominal pains so i follow or try to a soft diet high in protein

Just diagnosed with AS - help https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/just-diagnosed-with-as-help-138 2018-10-05 00:20:10

Stofleekayl693

11/07/2018 at 11:57 PM

Stofleekayl693

Last activity on 09/26/2023 at 11:23 PM

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23 comments posted | 15 in the Ankylosing spondylitis Forum

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@8Nadruplay‍ thank you so much for your input!

Just diagnosed with AS - help https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/just-diagnosed-with-as-help-138 2018-11-07 23:57:41

Beweewail0

11/09/2018 at 9:29 PM

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Beweewail0

Last activity on 10/22/2026 at 11:54 PM

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7 comments posted | 7 in the Ankylosing spondylitis Forum

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I was diagnosed with AS 16 years ago and had to retire from the military early due to it. My rheumatologist has had me on Entanercept (Enbrel) for about 14 years. It’s a biological injection I give myself weekly. It slows the progression and helps with pain. I have no issues with the treatment and it’s kept me from being a knuckle dragger so far. It is pricey but I get it through the VA so I don’t have to pay for it. Most insurance does cover a good bit of the cost though. My cousin uses it too and her insurance helps a lot.

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Robert S. Wilson Jr.

Just diagnosed with AS - help https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/just-diagnosed-with-as-help-138 2018-11-09 21:29:10

6094Measaimushan

05/13/2026 at 9:10 AM

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6094Measaimushan

Last activity on 10/26/2026 at 3:56 PM

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Interested in CHARGE syndrome since 2026

135 comments posted | 5 in the Ankylosing spondylitis Forum

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Receiving an Ankylosing Spondylitis (AS) diagnosis can experience overwhelming, but it is step one toward handling the condition and finding alleviation. it's miles everyday to feel shocked, relieved, or scared, however realize that most of the people with AS hold to paintings, live energetic, and live full lives

Just diagnosed with AS - help https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/just-diagnosed-with-as-help-138 2026-05-13 09:10:59

8Mouflayng

09/29/2026 at 11:12 AM

8Mouflayng

Last activity on 09/29/2026 at 11:12 AM

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Interested in Ankylosing spondylitis since 2026

1 comment posted | 1 in the Ankylosing spondylitis Forum

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I think changes in posture can be one of those things that happen gradually, so it’s easy not to notice at first. It would be interesting to hear whether others have noticed specific changes over time and what has helped them maintain better posture. @search game

Just diagnosed with AS - help https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/just-diagnosed-with-as-help-138 2026-09-29 11:12:48

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