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  • How has ankylosing spondylitis affected your eyes?
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Living with ankylosing spondylitis

How has ankylosing spondylitis affected your eyes?

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avatar EmilyJP

EmilyJP

11/03/2023 at 1:21 PM

avatar EmilyJP

EmilyJP

Last activity on 11/03/2023 at 1:19 PM

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11 comments posted | 9 in the Living with ankylosing spondylitis group


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Hello,

I was warned that AS can affect the eyes. Does anyone have uveitis, or inflammation in the middle layer of the eye? Just curious how common it is and how you were diagnosed.

Thanks!

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avatar LizziB

LizziB

11/09/2023 at 9:52 PM

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avatar LizziB

LizziB

Last activity on 04/21/2024 at 8:17 PM

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603 comments posted | 16 in the Living with ankylosing spondylitis group

24 of their responses were helpful to members


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Hello @EmilyJP

How are you doing today?

Thank you for getting this discussion started. I will tag a few members to see if they have experience with eye ailments.

@Jakette @Laurie2172 @ShirtMac @LisaBell1969 @agrayson5287 @jmjj2456 @desiree7799 @Toni660 @Bearmom @MaryleePA @catherene @Odessa @MBWhitehouse @Ranlymberis @Jackieelkins79 @Kristie68 @NancyB @Gdepozsgay @lucasj @TerriJeanne @MsDiagnosed @Lonnie1 @Lmg21532 @Babegurl17 @Katkat @antonia3 @mariannamay @AdelevS @Iainrocks

Do you have any eye problems? Have these problems been linked to your AS? What has your doctor prescribed to help? How do you do to cope?

Take care,

Lizzi from the Carenity team

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LizziB


How has ankylosing spondylitis affected your eyes? https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/how-does-ankylosing-spondylitis-affect-the-eye-5561 2023-11-09 21:52:43

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avatar CDKennedy

CDKennedy

11/20/2023 at 11:31 PM

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avatar CDKennedy

CDKennedy

Last activity on 05/08/2025 at 5:17 AM

Joined in 2018


26 comments posted | 12 in the Living with ankylosing spondylitis group

1 of their responses was helpful to members


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@LizziB I have had extreme changes in my eyes. I have gone to several eye doctors and they all say it is dry eyes. But I only have trouble at night. My eyes won't open because they stick together. I wash them out and it helps a little.Different eyedrops lasts about 5 minutes. Ididn't have this problem until my AS becomes more severe. It may have nothing to do with AS but I thought I would post this in case someone else had this problem.





How has ankylosing spondylitis affected your eyes? https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/how-does-ankylosing-spondylitis-affect-the-eye-5561 2023-11-20 23:31:10

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avatar emyallium

emyallium

Edited on 07/03/2025 at 9:47 AM

avatar emyallium

emyallium

Last activity on 01/12/2024 at 8:20 AM

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1 comment posted | 1 in the Living with ankylosing spondylitis group

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Uveitis, which is inflammation of the middle layer of the eye (the uvea), is indeed a possible complication of ankylosing spondylitis (AS). While I don't have personal experiences or access to individual statistics, I can provide general information about uveitis and its association with AS. Uveitis can occur in various forms, including anterior uveitis, which is the most common type associated with AS. It typically presents as redness, eye pain, light sensitivity, and blurred vision. It's important to note that uveitis can also occur independently of AS.

@EmilyJP, [This content has been moderated by an administrator]  @CDKennedy



How has ankylosing spondylitis affected your eyes? https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/how-does-ankylosing-spondylitis-affect-the-eye-5561 2023-12-15 03:38:26

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avatar CDKennedy

CDKennedy

12/17/2023 at 7:13 PM

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CDKennedy

Last activity on 05/08/2025 at 5:17 AM

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26 comments posted | 12 in the Living with ankylosing spondylitis group

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@emyallium Thank you for your response. It sounds a lot like what I experience. I have been to a couple of eye Drs yet they don't seem to want to give me that diagnosis. But they haven't help me even after all these yrs either. I will look into treatments for Uveitis.




How has ankylosing spondylitis affected your eyes? https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/how-does-ankylosing-spondylitis-affect-the-eye-5561 2023-12-17 19:13:33

avatar vernakuhlman

vernakuhlman

02/13/2024 at 6:01 AM

avatar vernakuhlman

vernakuhlman

Last activity on 02/13/2024 at 5:57 AM

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2 comments posted | 2 in the Living with ankylosing spondylitis group


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@emyallium Your feedback is much appreciated. It resembles my experience. None of my two eye doctors will diagnose me with it. Over the years, they've been useless to me. I will research uveitis treatments.


How has ankylosing spondylitis affected your eyes? https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/how-does-ankylosing-spondylitis-affect-the-eye-5561 2024-02-13 06:01:18

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avatar JTom4cats

JTom4cats

02/13/2024 at 2:35 PM

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avatar JTom4cats

JTom4cats

Last activity on 07/23/2025 at 11:22 PM

Joined in 2019


20 comments posted | 17 in the Living with ankylosing spondylitis group

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I started having Uveitis issues with my eyes when I was in my 50's. The itching and light sensitivity was very bad. I consulted an Ophthalmologist and was given a shot just beneath the eye. It felt better in about 1 day and I followed up with drops for weeks after. It usually came back every year for awhile and I was able to get it knocked down with drops. I took shots when it was really bad. Now if it happens on the weekend (great timing) I can call and get drops as long as I go into to see the Dr the next work day to confirm the problem. Seeking medical attention from a specialist should be done quickly.

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How has ankylosing spondylitis affected your eyes? https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/how-does-ankylosing-spondylitis-affect-the-eye-5561 2024-02-13 14:35:17

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avatar berrisonkaden

berrisonkaden

Edited on 07/03/2025 at 9:47 AM

avatar berrisonkaden

berrisonkaden

Last activity on 07/02/2025 at 8:58 AM

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Patient, Ankylosing spondylitis since 2025


1 comment posted | 1 in the Living with ankylosing spondylitis group


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@JTom4cats Ankylosing spondylitis (AS) can significantly affect the eyes, most commonly through a condition called uveitis, which is inflammation of the uvea , [This content has been moderated by an administrator] the middle layer of the eye. This can cause sudden eye pain, redness, blurred vision, and sensitivity to light, typically in one eye at a time.


How has ankylosing spondylitis affected your eyes? https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/how-does-ankylosing-spondylitis-affect-the-eye-5561 2025-07-02 07:42:40

avatar JTom4cats

JTom4cats

07/03/2025 at 7:18 PM

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avatar JTom4cats

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Last activity on 07/23/2025 at 11:22 PM

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20 comments posted | 17 in the Living with ankylosing spondylitis group

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@berrisonkaden I used to get flare ups almost every year (like clockwork). On my first episode, I was out of town, spent 1/2 the night in the emergency room where they had no clue. I came home, waited a few days as advised and then went to an ophthalmologist. My eye were in bad shape. I got a shot under the eye and it worked quickly. I usually get seen quickly when it starts again and have only had the shot one other time. Usually they give you drops which take a little more time.

For some reason it has been years since I have had this issue. Folks, it is no joke, when you get light sensitivity and itching in an eye, see someone quickly.

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How has ankylosing spondylitis affected your eyes? https://www.carenity.us/forum/other-discussions/living-with-ankylosing-spondylitis/how-does-ankylosing-spondylitis-affect-the-eye-5561 2025-07-03 19:18:20

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