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How has ankylosing spondylitis affected your eyes?

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EmilyJP

11/03/2023 at 1:21 PM

EmilyJP

Last activity on 11/03/2023 at 1:19 PM

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11 comments posted | 9 in the Ankylosing spondylitis Forum

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Hello,

I was warned that AS can affect the eyes. Does anyone have uveitis, or inflammation in the middle layer of the eye? Just curious how common it is and how you were diagnosed.

Thanks!

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LizziB

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11/09/2023 at 9:52 PM

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LizziB

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Last activity on 04/21/2024 at 8:17 PM

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Hello @EmilyJP

How are you doing today?

Thank you for getting this discussion started. I will tag a few members to see if they have experience with eye ailments.

@Jakette @Laurie2172 @ShirtMac @LisaBell1969 @agrayson5287 @jmjj2456 @desiree7799 @Toni660 @Bearmom @MaryleePA @catherene @Odessa @MBWhitehouse @Ranlymberis @Jackieelkins79 @Kristie68 @NancyB @Gdepozsgay @lucasj @TerriJeanne @MsDiagnosed @Lonnie1 @Lmg21532 @Babegurl17 @Katkat @antonia3 @mariannamay @AdelevS @Iainrocks

Do you have any eye problems? Have these problems been linked to your AS? What has your doctor prescribed to help? How do you do to cope?

Take care,

Lizzi from the Carenity team

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LizziB

How has ankylosing spondylitis affected your eyes? https://www.carenity.us/forum/ankylosing-spondylitis/living-with-ankylosing-spondylitis/how-does-ankylosing-spondylitis-affect-the-eye-5561 2023-11-09 21:52:43

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CDKennedy

11/20/2023 at 11:31 PM

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CDKennedy

Last activity on 04/01/2025 at 10:58 PM

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@LizziB I have had extreme changes in my eyes. I have gone to several eye doctors and they all say it is dry eyes. But I only have trouble at night. My eyes won't open because they stick together. I wash them out and it helps a little.Different eyedrops lasts about 5 minutes. Ididn't have this problem until my AS becomes more severe. It may have nothing to do with AS but I thought I would post this in case someone else had this problem.

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emyallium

Edited on 01/12/2024 at 8:47 AM

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Uveitis, which is inflammation of the middle layer of the eye (the uvea), is indeed a possible complication of ankylosing spondylitis (AS). While I don't have personal experiences or access to individual statistics, I can provide general information about uveitis and its association with AS. Uveitis can occur in various forms, including anterior uveitis, which is the most common type associated with AS. It typically presents as redness, eye pain, light sensitivity, and blurred vision. It's important to note that uveitis can also occur independently of AS.

@EmilyJP, @Snake Game, @CDKennedy

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CDKennedy

12/17/2023 at 7:13 PM

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@emyallium Thank you for your response. It sounds a lot like what I experience. I have been to a couple of eye Drs yet they don't seem to want to give me that diagnosis. But they haven't help me even after all these yrs either. I will look into treatments for Uveitis.

vernakuhlman

02/13/2024 at 6:01 AM

vernakuhlman

Last activity on 02/13/2024 at 5:57 AM

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@emyallium Your feedback is much appreciated. It resembles my experience. None of my two eye doctors will diagnose me with it. Over the years, they've been useless to me. I will research uveitis treatments.

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JTom4cats

02/13/2024 at 2:35 PM

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Last activity on 04/25/2025 at 11:04 PM

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I started having Uveitis issues with my eyes when I was in my 50's. The itching and light sensitivity was very bad. I consulted an Ophthalmologist and was given a shot just beneath the eye. It felt better in about 1 day and I followed up with drops for weeks after. It usually came back every year for awhile and I was able to get it knocked down with drops. I took shots when it was really bad. Now if it happens on the weekend (great timing) I can call and get drops as long as I go into to see the Dr the next work day to confirm the problem. Seeking medical attention from a specialist should be done quickly.

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CDKennedy

Edited on 05/22/2022 at 10:09 PM

I am in the severe range now at 74 yrs old. I have found thru trial and error and getting older with SA, I sleep on my back because I can hardly turn to my side now. I also take 10 mg Melatonin. I didn't know it came in 20 mg! (Thanks ladyslipper 67) What has really help with my back pain, when in bed, is a large memory foam wedge. The large end is under my knees and my legs go down to the small end. It doesn't move when I sleep but then again I am not turning over back and forth. This takes the pressure off my back. I hope this helps someone.

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CDKennedy

Edited on 05/22/2022 at 10:09 PM

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