Patients Ulcerative colitis
Topic of the discussion
Posted on 8/13/20 5:59 PM
I hope you're doing well! I thought I would open this discussion so we can get to know one another better!
So, what's your UC story? When were you diagnosed? What type of UC do you have? What treatments have you tried and how have they worked for you? How are you doing today?
@Callie22 @robinbobinlobin @LouisR @StevenShapiro078 @tmc427 @lcerracchio @Kvandermattson @HadEnough @Mnholloman84 @Neicey @Mommy2lyssa @Bnoland73 @KarenGrace @rapperson1 @JaclynEP @Katelynn.manuel15
Feel free to introduce yourself and share your story here!
Beginning of the discussion - 8/14/20What is your ulcerative colitis story? Let's share! https://www.carenity.us/forum/ulcerative-colitis/living-with-ulcerative-colitis/what-is-your-ulcerative-colitis-story-lets-sha-2351
Posted on 8/14/20 5:32 PM
@Courtney_J I was diagnosed in my late 20's. I'm in my 50's now. I had been having problems for a few years but I was too embarassed to talk to anyone about it or see a doctor. Eventually it got to the point where I could barely get through the day like a normal human being so I finally saw a doctor. I had a hard time talking to people about it, so I've kept it mainly on a "need to know basis" with people, only a few close friends and family members know about it and then my company at work and some coworkers. I'm doing better now after all these years, my flares are pretty well managed by mesalamine (Pentasa).
Posted on 8/31/20 4:48 PM
My son was diagnosed about a year ago. He had been having stomach problems for god knows how long, because he wouldn't talk to us about it. We eventually noticed that he was losing a lot of weight and was spending a lot of time in the bathroom and was lethargic (harder than you'd think to pick out in a teen), and finally after a big flare where he had a very high fever, we took him to the ER and they diagnosed booked him in for a colonoscopy pretty quickly after a CT scan showed colon damage. He's had adjusting to the diagnosis because he just wants to be a regular teen. I'm hoping that I can get some insight on here to help him through this. He's going to need to learn to take care of him self as an adult!