Stiff person syndrome
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Ongoing discussions - Cold Agglutinin Disease

Living with a rare disease

Current topics:

- What is the most frustrating or difficult aspect of living with a rare disease?
Hello everyone, How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha

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Ongoing discussions - Nutrition / Metabolism / Endocrine glands

Living with conditions affecting nutrition, the metabolism and endocrine glands

Current topics:

- What can we do to stay healthy while stuck at home?
I feel discouraged about my weight loss. The best thing for me is the pool, but they are all closed.

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News and information

Testimonial

Stiff person syndrome (SPS) and Hodgkin's lymphoma: "They had never seen a case like mine!"

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US Approves First RNA Interference Drug