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Primary ciliary dyskinesia Forum

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Medical fact sheet

Primary ciliary dyskinesia

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Living with a rare disease
Living with respiratory conditions

 Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar Cherimillr

avatar TCoffey

avatar AlphaBehemonth

 Living with respiratory conditions

Can we be prescribed anything for the anxiety caused by shortness of breath (dyspnea)?

avatar RandolfMoore

avatar Thakera

avatar Chuck1252

 Living with respiratory conditions

Really don't want to know life expectancy

avatar uncleanatol

avatar gloriawilson.nutrition

avatar LizziB

 Living with respiratory conditions

Welcome to the respiratory conditions group! What's your diagnosis?

avatar Thakera

avatar Gp1961

avatar tator1999

 Living with respiratory conditions

Resmed machine no longer taking data

avatar Nisey69

avatar Susan55

avatar Gnorts58

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