Back

Pelizaeus-Merzbacher disease Forum

  •  1 member
  •  8 discussions

Medical fact sheet

Pelizaeus-Merzbacher disease

All
Living with a rare disease
Living with conditions affecting nutrition, the metabolism and endocrine glands

 Living with a rare disease

How were you diagnosed with a rare disease?

avatar Dorothyann

 Living with conditions affecting nutrition, the metabolism and endocrine glands

How do you take care of your pancreas?

avatar Somya.P

avatar Lisa45764

avatar Nick51

 Living with a rare disease

Parsonage-Turner Syndrome treatment

avatar Somya.P

 Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar inesensual

avatar Louise123

avatar Cherimillr

 Living with a rare disease

Mast cell activation syndrome (MCAS): How were you diagnosed?

avatar Louise123

 Living with conditions affecting nutrition, the metabolism and endocrine glands

Vitamin B12 Green Food Best For Healthy Long Life

avatar henryaham897

avatar hundal

 Living with conditions affecting nutrition, the metabolism and endocrine glands

What can we do to stay healthy while stuck at home?

avatar jMouzac

avatar jieyang-us

avatar Courtney_J

Give your opinion

Survey

Satisfaction survey

Survey

What do you think about the Carenity Forum and community?

Survey

Help shape the future of Carenity!

Survey

How were you diagnosed?

Articles to discover...

US Approves First RNA Interference Drug

09/04/2018 | News

US Approves First RNA Interference Drug

Mental health at work: how to recognise the first signs of poor mental health and take care of yourself

10/10/2025 | Advice

Mental health at work: how to recognise the first signs of poor mental health and take care of yourself

The truth about vaccines: Here’s what really happens if you skip your shots

10/04/2025 | News

The truth about vaccines: Here’s what really happens if you skip your shots

Antibiotics: What side effects should you look out for to protect your health?

09/13/2025 | News

Antibiotics: What side effects should you look out for to protect your health?

Medication leaflets made simple: Here’s what you need to know to stay safe

09/12/2025 | Advice

Medication leaflets made simple: Here’s what you need to know to stay safe

Intuitive eating: Can listening to your body heal your relationship with food?

09/06/2025 | Nutrition

Intuitive eating: Can listening to your body heal your relationship with food?

SSRIs: Are these antidepressants right for you?

09/05/2025 | News

SSRIs: Are these antidepressants right for you?

Back from summer? Here’s why a gentler return to routine matters

08/30/2025 | Advice

Back from summer? Here’s why a gentler return to routine matters