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What has helped you most as a Parkinson’s caregiver?
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susan112
susan112
Last activity on 04/30/2025 at 7:42 PM
Joined in 2024
Family/friend of a patient with Parkinson's disease since 2025
Other condition: Tracheal stenosis
14 comments posted | 5 in the Parkinson's disease Forum
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My husband was diagnosed of Parkinsons disease 2 years ago, when he was 49. He had a stooped posture, tremors, right arm does not move and also a pulsating feeling in his body. He was placed on Senemet for 8 months and then Sifrol was introduced and replaced the Senemet, during this time span he was also diagnosed with dementia. He started having hallucinations, lost touch with reality. Suspecting it was the medication I took him off the Siferol (with the doctor’s knowledge) and started him on PD-5 natural herbal formula we ordered from AKNNI HERBAL CENTRE, his symptoms totally declined over a 3 weeks use of the AKANNI HERBAL Parkinsons disease natural herbal formula. He is now almost 51 and doing very well, the disease is totally reversed! (Visit w w w.aknniherbscentre .com)
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Somya.P
Community managerGood advisor
Somya.P
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Last activity on 04/30/2025 at 2:40 PM
Joined in 2023
600 comments posted | 3 in the Parkinson's disease Forum
19 of their responses were helpful to members
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Hi everyone, hope you’re doing well today 😊
Caring for someone with a new Parkinson’s disease diagnosis can feel overwhelming at first, for both the person living with the condition and their loved ones. The early stages often come with a lot of uncertainty, questions, and emotional ups and downs.
If you’ve been a caregiver or supported someone with Parkinson’s, your experience could be incredibly helpful to others who are just beginning this journey.
❓ What advice would you give to someone new to caregiving?
❓ What do you wish someone had told you in the beginning?
❓ What helped you most, emotionally, practically, or medically, in the early stages?
@Puggies @Lupe12 @equusamie @SavannahMathewson1 @Kerrybromas @DamienUS @lesliebartnicki6 @Jujubee @Dansgirl2013 @MaichB @cbholder3 @DonLeBlanc @fleagle5 @Rmcdowra56 @Rfrey52 @Mralmost @zimfour @DebRog56 @mauidennis @Lydia53 @Unclehim @BeckyDowdy @bomniechismar @Ahmedlatif @davidwisneer @Davidwisner310 @lesliebartnicki75 @Kimmy50707 @katherinebhana @katherinebhana34 @Sher777 @pramberger @carolinemcgaughey8 @Scotthalcomb @Judyhalcomb @teresamalllett @JAL1960 @DonMLeBlanc @pattimanners048 @pattimanners04 @pattimanners00 @pattimanners8 @Pattimanners98 @pattymanners @davidcraven399 @dcravens844 @dcraven692
Let’s support each other through shared experience.
Take care,
Somya from the Carenity Team 🌼