Patients Ovarian cancer
Topic of the discussion
Posted on 6/29/20 3:35 PM
How are you today?
@BonnieC @Lisa4424 @lhofmann1 @Jenniferrebert @Patty22373 @Stacewhoop @Pamiesue10 @Mrwhorton53 @MR1190 @Weemac @Azucena @GaylynR @Saravp73 @HolliJones @Shaiy75 @Vgregory @babydoll75 @dianezinn @loriees @Carol pb
I've created this discussion to give us a space in our ovarian cancer community to talk about anything and everything!
For example, what is your favorite little pleasure of the day? What do you like to do for for fun? How do you stay positive through your cancer?
You are free to share on just about everything here! So please don't hesitate!
Beginning of the discussion - 6/29/20Ovarian cancer: Let's talk about anything and everything! https://www.carenity.us/forum/ovarian-cancer/living-with-ovarian-cancer/ovarian-cancer-lets-talk-about-anything-and-everything-2139
Posted on 6/29/20 7:29 PM
@Courtney_J This is a nice idea. I was diagnosed early this year and was totally blindsided even though it kind of runs in my family. I just never thought it could happen to me! I was due to go in for surgery right when the coronavirus hit and between my doctor and me and the hospital we decided to postpone. So I'm going in for my hysterectomy this Friday! I'm really starting to get scared because it's all finally happening and I don't know what to expect. I've had my moments where I was down about this, but I'm a pretty positive person so I've been dealing with it pretty well. They were able to catch it early so unless something crazy has happened since the beginning of the year, I should be ok.
For fun, my favorite thing is to run with my dogs. And they seem to love it too. Hope you're all doing alright!
Posted on 7/9/20 4:45 PM
sitting at my computer reading people worries and advice on this site i love this site and having been diagonsied with grade b stage 4 overion cancer i didnt want to believe i was dieing and to think about being away and leaving my husband 2 sons 5 daughter and 3 grandkids NOPE not me i started doing my research how to cure overion cancer so i started watching you tube i came upon TED , ICEMAN is man who have proven facts this works for your body n mind breathing check him out on you tube i also listen to low freuency music tones before i go to bed and how i know it was working before i started chemo my onocologist ask me what was i doing cause the level were lower not as high 530 like before so i told him he smiled and said he was researching about that also so we made date when to start chemo every 21 days 7 hrs long so in may 2020 i went did a full hysterectomy and talk about mental and emotional trip and knowing that codvid is everywhere but i went my family couldnt be there no visitor in hospital i faced my fears and i guess it as a good thing because i realized i was supposed to be there and and when i woke up in my room my onocologist said he got the cancer out what he can see but have to do couple more session of chemo so iam on my last chemo session in august but the chemo really does a number on my body iam in pain for week down using cbc oil hot baths all the time and muscle rub for my bones and i cant hardly eat so iam eating fruits all the time drinking water i want to say check out what worked for me i wanna send out good vibes and prayers to all to believe in miracles it happened to me and it will happen to you higher power is listening and watching over all of us just have to listen to the good inside its your destiny your in controll and there are good people still in our world with souls who care god bless everyone xoxo lisa t
Posted on 7/11/20 3:51 AM
I have been cancer free for over 2 years but recently been having what feels like menstrual cramps and pain in the right side of my back. I have a CT scan and bloodwork scheduled for the week of the 19th but I am trying to find anyone who had recurrence to see if they had the same symptoms that I am having. Thanks.
Posted on 7/13/20 3:02 AM
my a stomach issue hope they find what it is keep posted also wew can think our body sick it could happen so tty mot to think and stress so much your body been throw hell and back trying to get adjustedbnow yout cancer free owesome owesome so just happy your listening to ur body signs getting the right care just contitune to eat healthy take time to listen to your inner self .you be okay sending out postive vibes n prayers
Posted on 7/27/20 10:42 PM
I was diagnosed in October of 2019. I was completely blindsided I had no pain and no real symptoms. The only thing that stood out was I was extremely tired. After a couple of weeks of being tired I started having a hard time taking a deep breath. It was then that my husband took me to the ER and they did a CT scan and came back and said that I had stage 4 ovarian cancer. They said the scan showed 6 softball-size tumors in my abdomen and that my lymph nodes are swollen as well. Not knowing what to do I lay there in my hospital bed and handed it over to God. I told Him that I had no idea what to do and then if he would lead me I would follow. Needless to say He did just that. I was hooked up with an amazing oncology team and a surgeon who later did my hysterectomy. I had 4 rounds of chemo before my surgery and 2 rounds after. When my surgeon got in there she was surprised that there were no tumors only calcification left where they had been. My tumor marker numbers went from 7900 down to 11 and no time. I am so blessed that God took this fight for me. I finish chemo in April and currently have an avastin infusion every 3 weeks and take lymparza daily. My problem is that I'm so tired. My poor husband does almost everything around the house. I get tired just walking to the kitchen. I have tried to walk a little more each day and build up but I still can't do more than three laps around the house at a time. I'm eating healthy and I don't appear to be dehydrated. My oncologist has checked my iron And it is fine. My red blood count and hemoglobin are a little low and my platelets are very low. Has anyone else experienced being so tired the time after chemo has ended?