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Living with lupus

Lupus- delusional thinking

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avatar exit

Unregistered member

11/10/2018 at 2:41 AM

Does anyone suffer from delusional thinking at times? I have been having more episodes of this (as a result of Lupus, I believe) and am not myself and not sure how to cope. I do yoga and workout but at times have no energy. Any advice would be helpful. 

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avatar mickey

mickey

11/12/2018 at 12:30 AM

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avatar mickey

mickey

Last activity on 10/22/2025 at 3:44 AM

Joined in 2018


133 comments posted | 18 in the Living with lupus group

15 of their responses were helpful to members


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Hello, how do i enter a chat room?

I feel so alone!!

How do I enter the chat room?

 


Lupus- delusional thinking https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-delusional-thinking-588 2018-11-12 00:30:05

avatar Lee__R

Lee__R

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Edited on 11/15/2018 at 2:27 AM

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avatar Lee__R

Lee__R

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Last activity on 04/03/2020 at 5:04 PM

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1,336 comments posted | 37 in the Living with lupus group

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I am sorry to hear about this struggle. From my research and knowledge of lupus, it caused inflammation, and one of the tissues that can be affected is the brain. Therefore, if the brain is inflamen and affected it can caused symptoms like headaches, but patients do also experience some forms of pyschosis.

Psychosis would likely be the general term to classify the delusions. This can likely be treated/controlled by controlling the inflammatory process of lupus and also antipsychotic drugs. 

I would recommend talking with your doctor and informing him/her of your symptoms and see what they recommend. Is your doctor aware of such symptoms.


Lupus- delusional thinking https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-delusional-thinking-588 2018-11-15 02:22:06

avatar Lee__R

Lee__R

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11/15/2018 at 2:28 AM

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avatar Lee__R

Lee__R

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Last activity on 04/03/2020 at 5:04 PM

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1,336 comments posted | 37 in the Living with lupus group

2 of their responses were helpful to members


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@mickey‍ we currently do not have a chat room on this site at this time. You can post on the forums any topic you would like to discuss for members to respond. You can also private message members.

Please let me know if you need any assistance doing either.


Lupus- delusional thinking https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-delusional-thinking-588 2018-11-15 02:28:21

avatar lupus38

lupus38

11/15/2018 at 2:31 AM

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avatar lupus38

lupus38

Last activity on 01/10/2023 at 10:56 AM

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91 comments posted | 49 in the Living with lupus group


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@Lee_R is correct. However, some medications we use for lupus to control the inflammation can actually increase the likelihood of experiencing mood issues or delusional thinking as mentioned by the poster... 


Lupus- delusional thinking https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-delusional-thinking-588 2018-11-15 02:31:22

avatar Coco1933

Coco1933

Edited on 11/28/2018 at 6:21 PM

avatar Coco1933

Coco1933

Last activity on 11/07/2024 at 12:24 AM

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4 comments posted | 2 in the Living with lupus group


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I get headaches once in a while but never realized it could be from lupus.  I have both lupus and arthritis. 


Lupus- delusional thinking https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-delusional-thinking-588 2018-11-28 18:20:14

avatar mickey

mickey

12/03/2018 at 11:58 PM

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avatar mickey

mickey

Last activity on 10/22/2025 at 3:44 AM

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133 comments posted | 18 in the Living with lupus group

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HELLO FRIENDS AND HAPPY HOLIDAYS,

MY NAME IS MICHELE MCNEILL, AND I HAVE BEEN WATCHING THE POST LATELY. I AM SO TIRED AND I DO NOTHING ALL DAY!!! SO, I HAVE BEEN GETTING DEPRESSED. I HATE THE HOLIDAYS FOR THAT REASON!! I AM ALONE AND MY MOTHER HAD PASSED AWAY AND I JUST CAN NOT GET USE TO BEING ALONE!!! PLEASE DO FEEL FREE, TO CONTACT ME BY PHONE OR BY EMAIL. 

mickeyitaly3@aol.com 909 483-****


Lupus- delusional thinking https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-delusional-thinking-588 2018-12-03 23:58:33

avatar Lee__R

Lee__R

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12/06/2018 at 5:34 AM

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avatar Lee__R

Lee__R

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Last activity on 04/03/2020 at 5:04 PM

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1,336 comments posted | 37 in the Living with lupus group

2 of their responses were helpful to members


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@mickey I am sorry to hear about your depression and about the passing of your mother. I hope you find the support of the members here at Carenity. If you are suffering from depression, I recommend also that you seek out help, perhaps speaking with a counselor may help. 

Also we have a forum dedicated to depression and mental illnesses where you can communicate with other members suffering from the similar condition. To have access to these forums, you just simply need to hover your mouse over the "GET INFORMED" link above and click "MY CONDITIONS" and then "ADD CONDITION." At the ADD CONDITION screen, simply type in depression, select, and you will have access to the forums by going to MY GROUPS or the home screen. 

Check out the depression forum by clicking this link: https://member.carenity.ushttps://www.carenity.us/forum/autism-spectrum-disorder/living-with-behavioural-disorders-mental-illne-49

I also recommend you create your own discussion in the LUPUS forum and/or the depression forum and discuss your concerns so other members can respond directly to your post and concerns.

We want you to exercise caution when sharing your personal information on the public chat, so if you wish to delete your personal information you shared, simply click EDIT and delete or I can do it for you at any time upon your request.


Lupus- delusional thinking https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-delusional-thinking-588 2018-12-06 05:34:54
avatar exit

Unregistered member

12/06/2018 at 6:16 PM

Hi Michele,

i have almost no family and am alone as well. I understand the depression the holidays can bring on and mine too haven’t been the same since I lost my mother. Your mom is always your best friend. I’m here to chat if you ever need to. Just message me. Best to you and please hang in there. 


Lupus- delusional thinking https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-delusional-thinking-588 2018-12-06 18:16:34

avatar Jlknight

Jlknight

12/07/2018 at 2:45 AM

avatar Jlknight

Jlknight

Last activity on 09/08/2025 at 3:24 AM

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I am new to this sight. I have had the symptoms for years but hadn’t been diagnosed until recently. It took my symptoms to be monumental before I found a doctor that knew what he was looking at. I suffer with depression, hyperparathyroidism and the doctor wants to do surgery. I am currently on medication for the neuropathy and the depression and vitamin d3 due to a deficiency. 

I too lost my mother several years back. The holidays are hard for me too. She died just before Thanksgiving. She was the family’s motivator and my best friend. My family are my support. But I want to reach to people that understand what I am going through.

 


Lupus- delusional thinking https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-delusional-thinking-588 2018-12-07 02:45:30

avatar brag1710

brag1710

12/17/2018 at 7:53 PM

avatar brag1710

brag1710

Last activity on 08/12/2025 at 12:03 AM

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Hi Mickey, I'm new to this site too, feeling depressed  (holidays] and agree with your sadness. Good news, you're not alonea! HANG IN THERE.. SUNNY DAYS ARE AHEAD 😎

See the signature

G. Brannon


Lupus- delusional thinking https://www.carenity.us/forum/other-discussions/living-with-lupus/lupus-delusional-thinking-588 2018-12-17 19:53:51
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