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Oculocerebrorenal syndrome Forum

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Medical fact sheet

Oculocerebrorenal syndrome

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Living with a rare disease
Living with eye conditions
Living with kidney or urinary tract conditions
Living with conditions affecting nutrition, the metabolism and endocrine glands

Living with a rare disease

Do you struggle to get medication for your rare disease?

avatar mvn481

Living with a rare disease

How were you diagnosed with a rare disease?

avatar Dorothyann

Living with conditions affecting nutrition, the metabolism and endocrine glands

How do you take care of your pancreas?

avatar Somya.P

avatar Lisa45764

avatar Nick51

Living with a rare disease

Parsonage-Turner Syndrome treatment

avatar Somya.P

Living with kidney or urinary tract conditions

PhD CKD Survey

avatar OlaCKD

avatar jhonpip2

avatar jhonkelvin

Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar inesensual

avatar Louise123

avatar Cherimillr

Living with a rare disease

Mast cell activation syndrome (MCAS): How were you diagnosed?

avatar Louise123

Living with eye conditions

Living with an eye condition: What is your diagnosis?

avatar DonLeBlanc

Living with conditions affecting nutrition, the metabolism and endocrine glands

Vitamin B12 Green Food Best For Healthy Long Life

avatar henryaham897

avatar hundal

Living with conditions affecting nutrition, the metabolism and endocrine glands

What can we do to stay healthy while stuck at home?

avatar jMouzac

avatar jieyang-us

avatar Courtney_J

Living with eye conditions

Eye conditions and daily life: questions, experiences, advice

avatar mdwithms

Living with kidney or urinary tract conditions

What stage of chronic kidney disease are you currently in?

avatar SassyDana

avatar Betbud

avatar Christie08

Living with kidney or urinary tract conditions

Nutrition and diet for kidney disease: Can what we eat help our kidneys?

avatar mykidneys

avatar DIANAM

avatar MichelleStack

Living with kidney or urinary tract conditions

I wish to help someone with my frezenius 2008 dialysis machine.

avatar mrloss

Living with kidney or urinary tract conditions

Bladder Infection - help

avatar mrloss

avatar srchingme

avatar Lee__R

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