Neurofibromatosis Type 1 with Cutaneous Neurofibromas
Forum

Current topics:

• - How has living with neurofibromatosis affected your daily life?
  Hello everyone, We have created a new dedicated group to neurofibromatosis. For the first discussion here in the "Living with neurofibromatosis," please introduce yourself and talk about how neur

Current topics:

• - Have you had surgery to remove problematic growths and/or tumors? Share your experience
  Hi everyone, while there is no cure at this time for neurofibromatosis, one of the more common treatments is an operation to remove problematic growths or tumors. Such an operation, and the therapy a

Current topics:

• - What are the most troubling symptoms and complications?
  Hi everyone, Neurofibromatosis is a condition that can cause tumors to form in the brain, spinal cord, and nerves, which can cause varying symptoms and complications. What are the most troubling sy

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha

Current topics:

• - Did or do you have any fears about the COVID-19 vaccine?
  Many people are not taking the vaccine because. They dont know the long term affects of the vaccine
• - COVID-19 vaccine: What do you think?
  Hello everyone, How are you today? The pharmaceutical groups Pfizer (USA) and BioNTech (Germany), as well as Moderna (USA), announced last month that their vaccine candidates are around 94 and 95%
• - Have you had any side effects from the COVID vaccine?
  I got mine Wednesday and have had several reactions. None on injection day but the day after, sore arm, dry mouth. Next day felt fine! Day after that had chills body aches and fever, stayed in bed and