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Neurofibromatosis Type 1 with Cutaneous Neurofibromas Forum

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What are the symptoms of neurofibromatosis type 1 with skin tumours? How to get the right diagnosis? What are the treatments that fight the disease? Join our forum and our discussions!

Medical fact sheet

Neurofibromatosis Type 1 with Cutaneous Neurofibromas

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Living with a rare disease
Living with neurofibromatosis
Symptoms and complications of neurofibromatosis
Treatments for neurofibromatosis

 Living with a rare disease

How were you diagnosed with a rare disease?

avatar Dorothyann

 Living with a rare disease

Parsonage-Turner Syndrome treatment

avatar Somya.P

 Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar inesensual

avatar Louise123

avatar Cherimillr

 Living with a rare disease

Mast cell activation syndrome (MCAS): How were you diagnosed?

avatar Louise123

 Treatments for neurofibromatosis

Have you had surgery to remove problematic growths and/or tumors? Share your experience

avatar rickybobby

 Symptoms and complications of neurofibromatosis

What are the most troubling symptoms and complications?

avatar rickybobby

 Living with neurofibromatosis

How has living with neurofibromatosis affected your daily life?

avatar rickybobby

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