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Erythropoietic protoporphyria Forum

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Medical fact sheet

Erythropoietic protoporphyria

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Living with a rare disease
Living with conditions affecting nutrition, the metabolism and endocrine glands

 Living with a rare disease

How were you diagnosed with a rare disease?

avatar Dorothyann

 Living with conditions affecting nutrition, the metabolism and endocrine glands

How do you take care of your pancreas?

avatar Somya.P

avatar Lisa45764

avatar Nick51

 Living with a rare disease

Parsonage-Turner Syndrome treatment

avatar Somya.P

 Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar inesensual

avatar Louise123

avatar Cherimillr

 Living with a rare disease

Mast cell activation syndrome (MCAS): How were you diagnosed?

avatar Louise123

 Living with conditions affecting nutrition, the metabolism and endocrine glands

Vitamin B12 Green Food Best For Healthy Long Life

avatar henryaham897

avatar hundal

 Living with conditions affecting nutrition, the metabolism and endocrine glands

What can we do to stay healthy while stuck at home?

avatar jMouzac

avatar jieyang-us

avatar Courtney_J

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