What area of diabetic Care is "Lacking"

Hi. My name is Rebekah and I am an RN in Missouri.  My mother has type 2 diabetes and there are several areas of her care that I feel should have been addressed further or more often.

I am currently obtaining my Masters Degree in Nursing Education and part of that degree involves a direct patient care clinical where we select a chronic condition to study.  I would like to hear from others what your experiences have been and where you feel improvements could and should be made.

Areas that I have noted are :

Too much information to process when you are diagnosed

Little follow-up care

No referral to an endocrinologist

No real tracking by health professionals

No "adjustments" to care when health status has changed (my mom is older and tends to forget things more often which has never been addressed in the healthcare setting)

Lack of support for caregivers

I can probably name a lot more, but I am more interested in hearing from those that live with diabetes.

I know that I can't change everything, but I am and will always be a strong advocate for patients.

Hi @Hidden username‍ 

I think one to add would be not having enough knowledge and information given to you after diagnosis. Such as less common known complications or symptoms, I guess, that you may experience, as to not cause too much alarm, as well as better access or help when it comes to truly identifying changes that need to be made to your diet. This kind of falls under too little follow-up care that you mentioned above.

I agree. Thank you for your input

Hi @Hidden username‍ 

You may find these articles interesting. Members participated in a survey where they discussed their diagnosis journey, identifying certain things that were lacking in the medical care, how they felt during the diagnosis, and more.

Type 2 Diabetes Diagnosis: What Carenity members say

Type 1 Diabetes Diagnosis: What Carenity members say

Thank you!!!! That is very helpful!!!

Not being taken seriously when explaining that I do not live off of doughnuts and pie...it is super irritating to have a health professional assume that I am diabetic because I don't have sense enough to know how to eat. My blood sugar is high even when I DON'T eat sometimes.

My former primary care doc failed to schedule even one A1C test this entire YEAR. I got one elsewhere today and my A1C was 11. Obviously it is past time for a new tactic besides 30 units of Basalgar at night. I attempted to get a referral to my Mom's endocrinologist and it was never received although the staff insisted they had sent it. Then they did absolutely NOTHING. Lordy.

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