Colorectal cancer and stoma: What was your experience like?

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Patients Colorectal cancer

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Posted on

 Hi everyone, 

I haven't been on here in a while, and since the last time, my situation may have changed. I'm still waiting to hear back from my doctor, but depending on how my latest results are, there is a strong possibility that I may have to go in for another surgery and have an ileostomy done. When I was initially diagnosed I think I knew that it would be a possibility one day, but now I don't feel mentally prepared or know really what to expect.

Can anyone share what their experience was like having it done? How are you dealing with it now? Is there anything I should know? Is it something that is permanent? How do you live with it?

Thank in advance for your help!

Beginning of the discussion - 4/29/20

Colorectal cancer and stoma: What was your experience like?

• Community manager
Posted on

@cancer807808 Hello cancer807808, thank you for starting this discussion. I'm sorry you're going through that, wishing you the best for your results. Let me tag some members who may be able to share their experience with you.

Hello members, I hope you're doing well despite these difficult times! Have any of you had a temporary or permanent ileostomy as part of your treatment? What was your experience like? How are you handling it now if you still have it?

@loneil2778@Will1967@Kimberlyward12@Rdhbarbie@BabiesBboy@Andrewramirez805@jsl2020@Shikara81@CherylS@Gemmajune@Paul68@Deb268@rickie@CelesteEve@seth1963@nbkqz59@Bridgers1@beatriceb‍ 

Take care,

Courtney

Colorectal cancer and stoma: What was your experience like?


Posted on

So it's official, I'm going to need a stoma. Everything got delayed a bit from the COVID mess so I'm still waiting for the procedure to be done. I'd still love any advice or feedback from anyone that's had it done, I don't know what to expect.

Colorectal cancer and stoma: What was your experience like?

• Community manager
Posted on

@cancer807808 Hello cancer807808,I'm sorry to hear that. Please know that the Carenity community is here to support you.

Does anyone have any words of support or advice to share?
@Chndlr46@Bria007@Robyn29@thebrock_43942@Mjfla1@VickiM@Lynn1955@Ktotty@Adh22616

Take care,
Courtney

Colorectal cancer and stoma: What was your experience like?


Posted on

 Emergency surgery May 2018 , had a large tumor removed along with most of my transverse colon  gall bladder and appendix, 23 lymph nodes. Tumor was cancer, lymph nodes negative. Diagnosis stage 2 , 3, cosotomy on right side,  higher than belly button  permanent end ostomy to prevent anymore surgery. Some adjustment mentally, physically was easier. Ostomy success depends alot on placement and stoma protusion  mine is easy , I use a moldable ,1 piece, drainable ,clear nonvented bag made by convetec...wear comfortable clothing, lead a good, normal life. I refused chemotherapy which was a decidion I made after much research and prayer.  So far, so good, 😊. Ostomeys are not difficult to deal with. 

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