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Colorectal cancer and stoma: What was your experience like?
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Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 08/08/2022 at 11:09 AM
Joined in 2020
1,340 comments posted | 8 in the Colorectal cancer Forum
5 of their responses were helpful to members
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@cancer807808 Hello cancer807808, thank you for starting this discussion. I'm sorry you're going through that, wishing you the best for your results. Let me tag some members who may be able to share their experience with you.
Hello members, I hope you're doing well despite these difficult times! Have any of you had a temporary or permanent ileostomy as part of your treatment? What was your experience like? How are you handling it now if you still have it?
@loneil2778 @Will1967 @Kimberlyward12 @Rdhbarbie @BabiesBboy @Andrewramirez805 @jsl2020 @Shikara81 @CherylS @Gemmajune @Paul68 @Deb268 @rickie @CelesteEve @seth1963 @nbkqz59 @Bridgers1 @beatriceb
Take care,
Courtney
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Courtney_J, Community Manager, Carenity US
cancer807808
cancer807808
Last activity on 02/26/2024 at 2:09 AM
Joined in 2019
9 comments posted | 2 in the Colorectal cancer Forum
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So it's official, I'm going to need a stoma. Everything got delayed a bit from the COVID mess so I'm still waiting for the procedure to be done. I'd still love any advice or feedback from anyone that's had it done, I don't know what to expect.
Courtney_J
Community managerGood advisor
Courtney_J
Community manager
Last activity on 08/08/2022 at 11:09 AM
Joined in 2020
1,340 comments posted | 8 in the Colorectal cancer Forum
5 of their responses were helpful to members
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@cancer807808 Hello cancer807808,I'm sorry to hear that. Please know that the Carenity community is here to support you.
Does anyone have any words of support or advice to share?
@Chndlr46 @Bria007 @Robyn29 @thebrock_43942 @Mjfla1 @VickiM @Lynn1955 @Ktotty @Adh22616
Take care,
Courtney
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Courtney_J, Community Manager, Carenity US
Juicer
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Last activity on 10/09/2021 at 5:14 PM
Joined in 2018
5 comments posted | 1 in the Colorectal cancer Forum
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Emergency surgery May 2018 , had a large tumor removed along with most of my transverse colon gall bladder and appendix, 23 lymph nodes. Tumor was cancer, lymph nodes negative. Diagnosis stage 2 , 3, cosotomy on right side, higher than belly button permanent end ostomy to prevent anymore surgery. Some adjustment mentally, physically was easier. Ostomy success depends alot on placement and stoma protusion mine is easy , I use a moldable ,1 piece, drainable ,clear nonvented bag made by convetec...wear comfortable clothing, lead a good, normal life. I refused chemotherapy which was a decidion I made after much research and prayer. So far, so good, 😊. Ostomeys are not difficult to deal with.
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DCline3dogs
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
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DCline3dogs
I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.
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cancer807808
cancer807808
Last activity on 02/26/2024 at 2:09 AM
Joined in 2019
9 comments posted | 2 in the Colorectal cancer Forum
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Hi everyone,
I haven't been on here in a while, and since the last time, my situation may have changed. I'm still waiting to hear back from my doctor, but depending on how my latest results are, there is a strong possibility that I may have to go in for another surgery and have an ileostomy done. When I was initially diagnosed I think I knew that it would be a possibility one day, but now I don't feel mentally prepared or know really what to expect.
Can anyone share what their experience was like having it done? How are you dealing with it now? Is there anything I should know? Is it something that is permanent? How do you live with it?
Thank in advance for your help!