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Castleman disease Forum

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  •  11 discussions

Medical fact sheet

Castleman disease

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Living with
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Living with a rare disease

 Living with Castleman disease

What is your Castleman story?

avatar Somya.P

avatar mrepasky

avatar RhettB

 Living with a rare disease

Parsonage-Turner Syndrome treatment

avatar Somya.P

 Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar inesensual

avatar Louise123

avatar Cherimillr

 Living with a rare disease

Mast cell activation syndrome (MCAS): How were you diagnosed?

avatar Louise123

 Treatments for Castleman disease

What Castleman disease treatments have you tried? Have you had side effects?

avatar RhettB

 Living with Castleman disease

How can I best support my loved one with CD?

avatar RhettB

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Articles to discover...

Castleman disease:

09/18/2022 | Testimonial

Castleman disease: "From medical student to patient."

3 tips on how to stay positive despite being affected with Castleman disease!

08/23/2022 | Advice

3 tips on how to stay positive despite being affected with Castleman disease!

Testimonial - Castleman disease:

06/08/2022 | Testimonial

Testimonial - Castleman disease: "I was relieved to finally find out what I'd been suffering with!".

Castleman disease: tips for improving your daily life with the disease!

05/07/2022 | Advice

Castleman disease: tips for improving your daily life with the disease!

Castleman disease: The CDCN's unique approach to accelerating research

06/09/2021 | News

Castleman disease: The CDCN's unique approach to accelerating research

Castleman disease:

04/16/2022 | Testimonial

Castleman disease: "We will continue the search for a cure until all Castleman disease patients can live full lives!"

TAFRO syndrome: A focused look at this rare subtype of Castleman disease!

03/17/2022 | News

TAFRO syndrome: A focused look at this rare subtype of Castleman disease!

Castleman disease:

02/18/2022 | Testimonial

Castleman disease: "I am dedicating my life to help find a cure for my daughter while also advocating for all patients"

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