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Castleman disease Forum

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Medical fact sheet

Castleman disease

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Living with
Treatments for
Living with a rare disease

 Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar inesensual

avatar Louise123

avatar Cherimillr

 Living with a rare disease

Mast cell activation syndrome (MCAS): How were you diagnosed?

avatar Louise123

 Living with Castleman disease

What is your Castleman story?

avatar mrepasky

avatar RhettB

 Treatments for Castleman disease

What Castleman disease treatments have you tried? Have you had side effects?

avatar RhettB

 Living with Castleman disease

How can I best support my loved one with CD?

avatar RhettB

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Articles to discover...

Castleman disease:

09/18/2022 | Testimonial

Castleman disease: "From medical student to patient."

3 tips on how to stay positive despite being affected with Castleman disease!

08/23/2022 | Advice

3 tips on how to stay positive despite being affected with Castleman disease!

Testimonial - Castleman disease:

06/08/2022 | Testimonial

Testimonial - Castleman disease: "I was relieved to finally find out what I'd been suffering with!".

Castleman disease: tips for improving your daily life with the disease!

05/07/2022 | Advice

Castleman disease: tips for improving your daily life with the disease!

Castleman disease: The CDCN's unique approach to accelerating research

06/09/2021 | News

Castleman disease: The CDCN's unique approach to accelerating research

Castleman disease:

04/16/2022 | Testimonial

Castleman disease: "We will continue the search for a cure until all Castleman disease patients can live full lives!"

TAFRO syndrome: A focused look at this rare subtype of Castleman disease!

03/17/2022 | News

TAFRO syndrome: A focused look at this rare subtype of Castleman disease!

Castleman disease:

02/18/2022 | Testimonial

Castleman disease: "I am dedicating my life to help find a cure for my daughter while also advocating for all patients"