What Castleman disease treatments have you tried? Have you had side effects?

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Patients Castleman disease

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Posted on

Hi everyone,

How are you doing? emoticon cute

As you know, there is a broad range of treatments for CD depending on the type, and with each treatment may come a variety of side effects.

Have you had any side effects from your CD treatment? Which treatments have you tried? Have the side effects subsided with time, or do you still have them? Have you changed treatments because of the side effects? 

Feel free to share your experiences and opinions here!

Take care,

Courtney

Beginning of the discussion - 7/10/20

What Castleman disease treatments have you tried? Have you had side effects?


Posted on

@Courtney_J My brother's CD is in multiple lymph nodes in his body, so surgery wasn't really considered I don't think. For now he's doing biological therapy and at first he had some abdominal pain but it went away as the injections continued. He's having a bit of weight gain too but we're not sure it's related to the biologic.