How can I best support my loved one with CD?

Hi everyone,

How are you?

As you know, it can be scary for a loved one to receive the diagnosis of a rare disease like Castleman, and it may feel like the way forward is full of challenges and incertitudes. As a family member or caregiver, it can be difficult to find the right way to support your loved one and be there for them in the way they need.

So let’s share! What do you do to support your loved one living with CD through their diagnosis and life afterwards? And what do you do to care for yourself as a relative or caregiver?

Feel free to share your thoughts and advice, we’re all here to help one another!

Take care,
Courtney