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Anyone else having a difficult time managing side effects for cancer treatments?

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Unregistered member

11/14/2018 at 7:25 AM

I'm post single mastectomy stage 1 breast cancer. I been having one he'll of a time managing these awful side effects from, arimidex to exemestane and femara. Migraines, tendonitis, muscle spasms, joint pain, edema, nausea. My oncologist acts like this treatment is not a big deal and I'm one of the rare people who cannot tolerate these treatments. Anyonelse? I feel alone.

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Mimasw

05/05/2019 at 8:30 PM

Mimasw

Last activity on 02/16/2025 at 8:58 PM

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@GinaNewOrleans

I had all the side effects and I thought I was alone in this. Had to stop taking it. I’m on Tamoxifen but can only take it every other day. Doing better on it. It all has been a horrible experience. I want to live but they really need to come up with something better. After all I’ve been through it’s like why did I do it it if it may come back. Chemo and radiation has messed up my body big time and they don’t know if it will come back.

Anyone else having a difficult time managing side effects for cancer treatments? https://www.carenity.us/forum/cancer/your-opinion-on-cancer-treatments/anyone-else-having-a-difficult-time-managing-side-effects-for-cancer-treatments-aromatase-inhibitors-593 2019-05-05 20:30:39

Mimasw

05/05/2019 at 8:32 PM

Mimasw

Last activity on 02/16/2025 at 8:58 PM

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@sara_at32 they seem to not care what all this has done to our bodies

jackson12

06/19/2019 at 2:48 AM

jackson12

Last activity on 09/21/2022 at 10:11 PM

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@Mimasw I understand where you are coming from. We destroy our bodies with the treatments in hope it works... and in the process we kill basically any of the good cells bodies has left and just hope enough out survive the bad.

I wish there was something better too.

Susang

06/20/2019 at 5:39 PM

Susang

Last activity on 07/24/2023 at 6:17 PM

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I also have what I believe are Chemo and Femara side effects. I feel a great deal of anxiety and sadness. This is in addition to loss of taste and some neuropathy. The worst of these is the depression. I am seeing a therapist, hoping that she will be able to help me get through this and a do go to private yoga sessions twice a week. Can anyone help me get through. I am 2 years since diagnosis and 1 year since end of all treatment. Thank you, Susan

Mimasw

06/21/2019 at 2:35 PM

Mimasw

Last activity on 02/16/2025 at 8:58 PM

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@Susang The depression was so bad they made me stop taking femara. I tried to stick with it but I just couldn’t. I’m thinking about going off the tamoxifen because I am getting severe muscle pain and can barely walk. Took a break from it and I’m feeling good again. I’m beside myself just wish there was something better.

Mimasw

06/21/2019 at 2:41 PM

Mimasw

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@Mimasw I’m reading a book called Estrogen Matters I think anyone going through what we’re dealing with should read this.

Susang

06/21/2019 at 3:11 PM

Susang

Last activity on 07/24/2023 at 6:17 PM

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@Mimasw.. Dear Mimasw. I know how important it is to take the aromatose inhibitor for long term good results. It's such a quandry. I know that there is a third drug. Did you try that?

Mimasw

06/21/2019 at 3:15 PM

Mimasw

Last activity on 02/16/2025 at 8:58 PM

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@Susang I tried exemestane and it caused even more problems. Memory loss, nausea, insomnia and depression

Susang

06/21/2019 at 3:30 PM

Susang

Last activity on 07/24/2023 at 6:17 PM

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@Mimasw what about Arimedex (so). Have you tried it. Also, what about a mood elevator like Wellbutrin or an anti depressant or a mild tranquilizer. I have been told that the hormone inhibitor may be key to longer term survival. Believe me, I have and continue to ask

Mimasw

06/23/2019 at 1:41 AM

Mimasw

Last activity on 02/16/2025 at 8:58 PM

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@Susang Tried Arimedex same problems. I’m taking flax seed now hoping it will do the job. I don’t trust the doctors anymore.

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DCline3dogs

02/18/2024 at 9:05 PM

I completely understand as I don’t have anyone to talk to also. I’m a widow & I live alone. My oldest son died in 2021 & my youngest son & his family live 3 hours. My father is dead & my mother has chronic back pain & is immobile. My younger sister lives with our mother & she is going through a divorce from her husband who abandoned her. My sister doesn’t visit me, help me, call me & rarely texts me. I have various cousins, a niece & nephew that are spread out in nearby states but are hours away from me. After I told my friends I had cancer, they quit contacting me. I have learned how to be my own care giver. It has been very difficult. I’ll admit I’ve been depressed, cried a lot, felt sorry for myself but I never gave up. I prayed & read my Bible everyday. Then I found cancer groups online like this one where I could share what I was going through & got empathetic responses. That really kept me going. I hope you find someone to talk to but I highly recommend the online cancer chat groups.

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DCline3dogs

02/18/2024 at 9:05 PM

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Anyone else having a difficult time managing side effects for cancer treatments?

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