Anyone else having a difficult time managing side effects for cancer treatments?

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11/14/2018 at 7:25 AM

I'm post single mastectomy stage 1 breast cancer. I been having one he'll of a time managing these awful side effects from, arimidex to exemestane and femara. Migraines, tendonitis, muscle spasms, joint pain, edema, nausea. My oncologist acts like this treatment is not a big deal and I'm one of the rare people who cannot tolerate these treatments. Anyonelse? I feel alone.

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Voprish8747

05/05/2019 at 8:30 PM

Voprish8747

Last activity on 11/20/2025 at 2:22 PM

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18 comments posted | 17 in the Treatments for cancer group

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@GinaNewOrleans

I had all the side effects and I thought I was alone in this. Had to stop taking it. I’m on Tamoxifen but can only take it every other day. Doing better on it. It all has been a horrible experience. I want to live but they really need to come up with something better. After all I’ve been through it’s like why did I do it it if it may come back. Chemo and radiation has messed up my body big time and they don’t know if it will come back.

Anyone else having a difficult time managing side effects for cancer treatments? https://www.carenity.us/forum/other-discussions/your-opinion-on-cancer-treatments/anyone-else-having-a-difficult-time-managing-side-effects-for-cancer-treatments-aromatase-inhibitors-593 2019-05-05 20:30:39

Voprish8747

05/05/2019 at 8:32 PM

Voprish8747

Last activity on 11/20/2025 at 2:22 PM

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18 comments posted | 17 in the Treatments for cancer group

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@4577Thaicin they seem to not care what all this has done to our bodies

Cheythoagloobret2297

06/19/2019 at 2:48 AM

Cheythoagloobret2297

Last activity on 09/21/2022 at 10:11 PM

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12 comments posted | 7 in the Treatments for cancer group

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@Voprish8747 I understand where you are coming from. We destroy our bodies with the treatments in hope it works... and in the process we kill basically any of the good cells bodies has left and just hope enough out survive the bad.

I wish there was something better too.

Lanotrayt35

06/20/2019 at 5:39 PM

Lanotrayt35

Last activity on 07/24/2023 at 6:17 PM

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8 comments posted | 6 in the Treatments for cancer group

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I also have what I believe are Chemo and Femara side effects. I feel a great deal of anxiety and sadness. This is in addition to loss of taste and some neuropathy. The worst of these is the depression. I am seeing a therapist, hoping that she will be able to help me get through this and a do go to private yoga sessions twice a week. Can anyone help me get through. I am 2 years since diagnosis and 1 year since end of all treatment. Thank you, Susan

Voprish8747

06/21/2019 at 2:35 PM

Voprish8747

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@Lanotrayt35 The depression was so bad they made me stop taking femara. I tried to stick with it but I just couldn’t. I’m thinking about going off the tamoxifen because I am getting severe muscle pain and can barely walk. Took a break from it and I’m feeling good again. I’m beside myself just wish there was something better.

Voprish8747

06/21/2019 at 2:41 PM

Voprish8747

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@Voprish8747 I’m reading a book called Estrogen Matters I think anyone going through what we’re dealing with should read this.

Lanotrayt35

06/21/2019 at 3:11 PM

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@Mimasw.. Dear Mimasw. I know how important it is to take the aromatose inhibitor for long term good results. It's such a quandry. I know that there is a third drug. Did you try that?

Voprish8747

06/21/2019 at 3:15 PM

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@Lanotrayt35 I tried exemestane and it caused even more problems. Memory loss, nausea, insomnia and depression

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Leableeceesh7054

06/09/2025 at 1:37 AM

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@Voprish8747 I just started taking the exemestane and I have problems with my legs. When I try to go to sleep at night my legs start with pain and then I get very fatigued. So half of the nights I don't sleep.

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Lanotrayt35

06/21/2019 at 3:30 PM

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@Voprish8747 what about Arimedex (so). Have you tried it. Also, what about a mood elevator like Wellbutrin or an anti depressant or a mild tranquilizer. I have been told that the hormone inhibitor may be key to longer term survival. Believe me, I have and continue to ask

Voprish8747

06/23/2019 at 1:41 AM

Voprish8747

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@Lanotrayt35 Tried Arimedex same problems. I’m taking flax seed now hoping it will do the job. I don’t trust the doctors anymore.

Anyone else having a difficult time managing side effects for cancer treatments?

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