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CADASIL syndrome Forum

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Medical fact sheet

CADASIL syndrome

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Living with a rare disease
Living with cardiovascular diseases
Treatments for cardiovascular diseases
Living with a hearing impairment
Living with kidney or urinary tract conditions

 Living with a rare disease

How were you diagnosed with a rare disease?

avatar Dorothyann

 Living with cardiovascular diseases

How to break the vicious cycle of stress and heart disease?

avatar Sugar67

avatar Painhurt68

 Living with cardiovascular diseases

My sister has Printzmetal angina? Anyone have it or have any advice?

avatar Shenita

avatar whatistheissue

 Living with cardiovascular diseases

Overcoming anxiety after a heart attack

avatar Shenita

avatar heartful

avatar Mrubalcava

 Living with cardiovascular diseases

How do you manage blood pressure as you get older?

avatar Shenita

avatar Sugar67

avatar Ms.Vee

 Living with a rare disease

Parsonage-Turner Syndrome treatment

avatar Somya.P

 Living with cardiovascular diseases

Implantable cardioverter defibrillator (ICD)

avatar esobcz01

avatar Footslogger

avatar Shenita

 Treatments for cardiovascular diseases

Have you undergone surgery for your cardiovascular condition?

avatar Uniquonne

avatar Somya.P

avatar Jastanley9

 Living with kidney or urinary tract conditions

PhD CKD Survey

avatar OlaCKD

avatar jhonpip2

avatar jhonkelvin

 Living with cardiovascular diseases

What is your cardiovascular diagnosis? Let's share!

avatar SabinaYetta52

avatar Gordon

avatar Somya.P

 Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar inesensual

avatar Louise123

avatar Cherimillr

 Living with cardiovascular diseases

What is your diet like?

avatar Shenita

avatar Gwynne

avatar Mrubalcava

 Living with a rare disease

Mast cell activation syndrome (MCAS): How were you diagnosed?

avatar Louise123

 Living with a hearing impairment

What is your hearing loss story?

avatar gypsy4859

avatar Polina.K

 Treatments for cardiovascular diseases

Is Baxdrostat effective for hyperetension and stress?

avatar Rahul.R

 Living with cardiovascular diseases

How are you handling the end of the COVID-19 lockdown?

avatar Ms.Vee

avatar FLbound

avatar Tim1561

 Living with kidney or urinary tract conditions

What stage of chronic kidney disease are you currently in?

avatar SassyDana

avatar Betbud

avatar Christie08

 Living with kidney or urinary tract conditions

Nutrition and diet for kidney disease: Can what we eat help our kidneys?

avatar mykidneys

avatar DIANAM

avatar MichelleStack

 Treatments for cardiovascular diseases

Have you used the MYOMO robotic arm rehab device after a stroke?

avatar Juancitofish

avatar Bwade960

avatar Stepol

 Treatments for cardiovascular diseases

Short of breath with only slight exertion.

avatar BeachLife18

avatar missfixit79

avatar whatistheissue

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