Acromegaly
Forum

Current topics:

• - How does acromegaly impact your daily life?
  Hello everyone, How are you doing? Let's talk about acromegaly and daily life! How does acromegaly impact your daily life? Do any of the symptoms make it difficult to complete daily tasks? Have yo
• - Acromegaly and body image
  Hello everyone, How are you today? I thought I would open this discussion so we can talk about body image. Have you noticed any changes to your body caused by your acromegaly? How do you feel abou
• - Surgery for acromegaly
  Hi everyone, I've finally been scheduled for surgery to remove the pituitary tumor after years of struggling with this condition! I'm torn between excitement and anxiety, because it's obviously a big

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha

Current topics:

• - What natural herbs or supplements have you tried for painful joints?
  Hello Carenity members, I have had numerous surgeries on my clavicle (in fact, I have the first ever done surgery on my clavicle and I am in some medical books - have basically very minimal of my ori
• - Getting mobile when you cant move
  Any tips on regaining mobility.just getting back on your feet has so many challenges looking for ideas and support on this topic..
• - Photo testimonial: Years of diagnostic uncertainty facing Ehlers-Danlos Syndrome
    Delphine's testimonialYears of diagnostic uncertainty facing Ehlers-Danlos Syndrome    When I was a child, I was already in pain. Back pain, stomach pain. I thought it was the same for everyon