Von Hippel-Lindau disease
Forum

Current topics:

• - Welcome to the skin conditions group! Come say "Hello"!
  Hello everyone, I'm Courtney your community manager here on Carenity.  I thought I would open this group so we can share thoughts and experiences with skin conditions. So, what is your story? What is
• - How do you protect your skin in the winter?
  Hi, I know in my case with severe eczema winter is always the hardest time of year. I image it may be true for other skin conditions as well. How do you all protect your skin in winter? I try to take
• - Living with a skin condition: How do you deal with how others look at you?
  An unfortunate common complaint by those with skin conditions is that others may stare or make an ignorant or rude comment. Have you ever experienced stares or received negative comments from others?

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha
• - How were you diagnosed with a rare disease?
  Hello everyone, How are you doing? I thought I'd create this discussion to talk about being diagnosed with a rare disease! What were the first symptoms you experienced? How were you diagnosed? @A

Current topics:

• - COVID-19: How do you feel today?
  Hello everyone, I've opened this discussion so we can share our state of mind during this period of isolation! Let's come here everyday to share how we're feeling! What is the best way to stay pos
• - COVID-19: Should we fear a second wave?
  Hello everyone, How are you doing today? As countries throughout the world are and have been coming out of lockdown and life is begining to return to "normal", many people and health authorities ha
• - Telemedicine and COVID-19: What do you think?
  Hello everyone, How are you today? In recent months following the COVID-19 crisis, we've seen the the healthcare community turn more and more to telemedecine. Now, primary care physicians and other