Von Hippel-Lindau disease
Forum

Current topics:

• - What is the most frustrating or difficult aspect of living with a rare disease?
  Hello everyone,  How are you today? As you already know, a diagnosis of a rare disease can have a huge impact on one's life. It can bring new insights and information, but also many questions, cha

Current topics:

• - Unusual skin allergies/sensitivities: Do you have one?
  I am allergic (or maybe I should say sensitive) to one of the most benign substances on earth - aloe. I discovered that about 50 years ago when I accidentally burned my hand when taking a pan out of t
• - How do you protect your skin in the winter?
  Hi, I know in my case with severe eczema winter is always the hardest time of year. I image it may be true for other skin conditions as well. How do you all protect your skin in winter? I try to take
• - Welcome to the skin conditions group! Come say "Hello"!
  Hello everyone, I'm Courtney your community manager here on Carenity.  I thought I would open this group so we can share thoughts and experiences with skin conditions. So, what is your story? What is