Patients Ulcerative colitis
Topic of the discussion
Posted on 10/21/20 10:34 PM
How are you doing? I thought I'd open this discussion for us to talk about treatments for ulcerative colitis!
What treatments have you tried for UC? What has worked for you? Have you tried any alternative therapies or treatments?
@PatriciaWood @nanner @SheilaC @Callie22 @robinbobinlobin @LouisR @StevenShapiro078 @tmc427 @lcerracchio @Kvandermattson @HadEnough @Mnholloman84 @Neicey @Mommy2lyssa @Bnoland73 @KarenGrace @rapperson1
Feel free to share your experiences and advice here!
Beginning of the discussion - 12/12/20What treatments have you tried for ulcerative colitis? https://www.carenity.us/forum/ulcerative-colitis/your-opinion-on-ulcerative-colitis-treatments/what-treatments-have-you-tried-for-ulcerative-colitis-2667
Posted on 12/12/20 6:54 PM
Hello Everyone, I am a 31 year old male with severe UC, I was diagnosed 8 years ago. Lately it has gotten so bad that I have begun to consider surgery. I am wondering if any of you have had surgery or can direct me to some people who have. I would really like to talk to someone who has been through it and get their thoughts about how to go about finding the right surgeon and whether or not they feel their procedure was a success in trying to defeat the awful grip that UC puts on you.
Posted on 12/14/20 10:21 PM
I have UC and have discussed the use of entyvio with my doctor but have not decided to proceed with this medication. Is there anyone out there that has any experience with Entyvio?
Posted on 2/6/21 2:52 PM
@maklingensmith hi! I’ve had Crohn’s colitis for at least two years. Are used to have a flareup every couple months and then it would go away for a couple months. But it has not cleared up for 6 months. I tried Humira about six months ago but had a severe allergic reaction! so last month I started on Entyvio. I could tell a difference on the eighth day! You should really not expect any improvement for six weeks. I had my first infusion on January 5 and the second line on January 19. I go back on February 16 for the third infusion. It’s slowly getting better, day by day, because I have been practically housebound for two years! If I were you, I would try the Entyvio! I figure if I have a reaction at least I will be at the hospital! please let me know how you are doing!