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Parry-Romberg Syndrome Forum

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Medical fact sheet

Parry-Romberg Syndrome

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Living with a rare disease
Living with Infection - Inflammation - Immune system diseases
Living with skin conditions

 Living with a rare disease

What is the most frustrating or difficult aspect of living with a rare disease?

avatar Cherimillr

avatar TCoffey

avatar AlphaBehemonth

 Living with skin conditions

Can I get a massage with a skin condition?

avatar LizziB

avatar onlyme

 Living with skin conditions

Unusual skin allergies/sensitivities: Do you have one?

avatar EcZena

avatar uncleanatol

avatar John28

 Living with skin conditions

How to take care of the skin in winter?

avatar Rahul.R

avatar onlyme

 Living with skin conditions

What are the best skin creams for rosacea?

avatar Rahul.R

avatar onlyme

 Living with Infection - Inflammation - Immune system diseases

Money Struggles due to treatment

avatar Lee__R

avatar Hapmal195

 Living with skin conditions

Skin rash after a two month of Installing heart stents through cardiac catheterization

avatar Mohammed.Alnahhal

 Living with skin conditions

How do you treat your atopic dermatitis or eczema? What has worked for you?

avatar EcZena

avatar Courtney_J

 Living with skin conditions

Babies with Incontinentia pigmenti, does having a fever it make it worse?

avatar LizziB

avatar IPmomof1

 Living with skin conditions

How do you protect your skin in the winter?

avatar gordshelia

avatar John28

avatar Courtney_J

 Living with skin conditions

Welcome to the skin conditions group! Come say "Hello"!

avatar EcZena

avatar Courtney_J

 Living with skin conditions

Living with a skin condition: How do you deal with how others look at you?

avatar vitiligoaway

avatar onlyme

avatar Lee__R

 Living with skin conditions

CBD for eczema/atopic dermatitis?

avatar Courtney_J

avatar EcZena

 Living with Infection - Inflammation - Immune system diseases

Biotherapy and COVID-19: Has the virus had an impact on your treatment?

avatar mark48

avatar Tperillo

avatar jasmine1092

 Living with Infection - Inflammation - Immune system diseases

Coronavirus and immune system and inflammatory diseases - questions, concerns, tips?

avatar Harrish0I2

avatar gymloner1

avatar Jamieson

 Living with Infection - Inflammation - Immune system diseases

feeling trapped by the ticking time bomb quality of life with my lupus family tree

avatar Lee__R

avatar lupus38

avatar 1tob3w3

 Living with Infection - Inflammation - Immune system diseases

Fear

avatar Marglen

avatar Lee__R

avatar lupus38

 Living with Infection - Inflammation - Immune system diseases

Sle lupus, also bad spine with a lot of operations

avatar jasmine1092

avatar OddOkapi

 Living with Infection - Inflammation - Immune system diseases

"You look so good, how can you be so sick?"

avatar Lee__R

avatar lupus38

 Living with Infection - Inflammation - Immune system diseases

They call Systemic Lupus, "a wold in disguise"

avatar Lee__R

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