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- Survey and Discussion: Botulinum toxin injections for cervical dystonia
Survey and Discussion: Botulinum toxin injections for cervical dystonia
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Amsluvsfun
Amsluvsfun
Joined in 2019
I go to physical therapy twice weekly and it’s been worth every minute/dollar. Here’s the “regimen”.
moist heat for 10 min....Physical Therapist then does about 10 minutes of Myofascia Release on my head and neck , following that, Massage for my neck, shoulders and trapezoid muscles and then some time in the gym to work on my balance.
The massage really does wonders and I walk out without neck pain that lasts for two or three days...and then I go back! I don’t see terminating any part of PT for a long time, if ever.
No Botox for me.
Awatchman
Awatchman
Joined in 2019
14 days later....the only effect is right hand and right arm weakness. No effect on dystonic movements. Dr. notified. Next step?????
Amsluvsfun
Amsluvsfun
Joined in 2019
Has anyone else tried regular massages for your neck and shoulders?
Lee__R
Community managerGood advisor
Lee__R
Community manager
Joined in 2018
@Awatchman what was the doctor's suggestion after learning the botox was unsuccessful on the dystonic movements?
Awatchman
Awatchman
Joined in 2019
The only suggestion he could give me was an anticholinergic. But this has a side effect of short-term memory loss. That will not work for me in my line of work. Back to the drawing board. Looks like brain and hand training for me, which I will do myself with the help of the Lord.
Lee__R
Community managerGood advisor
Lee__R
Community manager
Joined in 2018
I am sorry to hear that @Awatchman... I would be curious to see about others possible success with natural or alternative treatments such as acupuncture/dry needling.
Amsluvsfun
Amsluvsfun
Joined in 2019
@Awatchman what about biofeedback? It’s worth exploring. Google neurofeedback as well as biofeedback.
Awatchman
Awatchman
Joined in 2019
Have you tried this or know anyone who has tried this? For the focal dystonia
Amsluvsfun
Amsluvsfun
Joined in 2019
I tried it and it helped. It helped me slow my nervous system down thru my breath, become more aware of stressors quickly and those two things alone help a ton. When I feel neck spasms/head tremors coming on I can usually control it to the point of stopping the spasms by focusing on my breath for a few minutes.
russode
russode
Joined in 2019
@gladys916 I think there are different doses of botox they can give u they start out slow and it definately takes at least 3 weeks before they start working I get 4 shots in my neck and by week 4 it is like night and day as far as the pain.
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Lee__R
Community managerGood advisor
Lee__R
Community manager
Joined in 2018
I also had the procedure and ordered the drugs. I had a botulinum injection 5 days ago. All I feel is like other weakness and injection sites. However, there is currently no proper effect.