What is your MS story? Let's share!

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Lee__R

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09/26/2019 at 3:49 AM

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Lee__R

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Last activity on 04/03/2020 at 5:04 PM

Joined in 2018

1,336 comments posted | 83 in the Living with Multiple Sclerosis group

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Hello everyone,

Welcome to the Multiple Sclerosis community!

It is true that it is not easy to know the path / experience of each member with MS and know who to reach out to or experiencing the same as you. Trust is essential to be able to talk and share calmly, especially in a community like this.

Therefore. we encourage all members in this group to introduce themselves.

Share a little about your story, when you were diagnosed, experiences, etc. with MS to introduce yourself to the community!

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Katelynn21

01/20/2020 at 5:41 PM

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Katelynn21

Last activity on 05/27/2021 at 2:05 AM

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8 comments posted | 8 in the Living with Multiple Sclerosis group

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I'm sorry, but your not alone... Last night I was feeling like wow I think I might be feeling better! I woke up to sharp electric pain in my shoulders and today ive had the partial blindness blurryness and vertigo... Back pain. My c and t spine mri came back normal aside from some herniated discs. It can explain some of my pain n discomfort but the other Neuro issues with vertigo, balance, memory ,cognitive function.. syncope, optic neuritis. I just did an eeg laat week the results of that havent come back yet... Maybe they will do further testing. Fingers crossed we get our answers!

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Katelynn Verville

What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-01-20 17:41:17

Katelynn21

Edited on 01/20/2020 at 5:46 PM

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Katelynn21

Last activity on 05/27/2021 at 2:05 AM

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8 comments posted | 8 in the Living with Multiple Sclerosis group

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Also in my research, in roughly 5% of all MS patients some lesions have go n undetected for a long time ( not appearing on test etc. ) some people have to live with the disease until further lesions present themselves unless a doctor decides your correlation of symptoms and other factors conclude that you need the definitive diagnosis. Because there is no one test to rule out or diagnose MS, this is where it becomes extremely hard to diagnose when MRI's come back ok but the patient still suffers. Well i hope the docs figure us out and give us some way of relief even if its just mental relief!

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Katelynn Verville

What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-01-20 17:45:58

Lovemegalooo

01/20/2020 at 6:17 PM

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Lovemegalooo

Last activity on 03/29/2025 at 5:44 PM

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8 comments posted | 5 in the Living with Multiple Sclerosis group

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It’s all so frustrating and I feel defeated :(

maybe that’s how the world will end, everyone will die from weird diseases caused by the crap in our food and the crap in our air :(

I have an appointment today, hopefully I’ll get some answers from my cervical spine mri. The dr did discover a cervical rib that could explain some of my symptoms but he was unsure,

ive been doing a little bit of research on rarediseases.org. Maybe that could be helpful for you?

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MegaloooMama

What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-01-20 18:17:27

Monkey

02/11/2020 at 7:46 AM

Monkey

Last activity on 02/20/2021 at 5:59 AM

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8 comments posted | 8 in the Living with Multiple Sclerosis group

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Hello my name is Marcus I have been diagnosed with Ms since April of last year. It started as a shake in my left hand then a couple weeks later my left hand seized up. Then two weeks after that then my left leg started to shake. Then two weeks later then my leg seized up. Then it became a safety thing at where I was working at. I was also at a hospital getting a MRI. Once I got done and sat up I noticed I had no vision. After 30 minutes of waiting I got worried. I was at the hospital for five days and I can only see the shapes of body's. Now I only have half my vision. But out of all of what I was going through I always kept a smile on my face which surprised a lot of doctors. I'm I'm curious if anyone else has those symptoms and how u deal with it

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Marcus

What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-02-11 07:46:40

Monkey

02/11/2020 at 7:53 AM

Monkey

Last activity on 02/20/2021 at 5:59 AM

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8 comments posted | 8 in the Living with Multiple Sclerosis group

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Marcus

What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-02-11 07:53:09

Katelynn21

02/12/2020 at 6:17 PM

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Katelynn21

Last activity on 05/27/2021 at 2:05 AM

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8 comments posted | 8 in the Living with Multiple Sclerosis group

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Hi Marcus! I just got my Diagnosis February 6th. I too experience terrible vision loss it comes and stays a long time days/weeks/months and will go away for hours/a day. My shoulder also shakes uncontrollably some times that is new or a foot will shake I get awful spasms all over.. They only way I manage this is more rest. Sorry your having troubles! I'm here for you. I know things like loosing control of your sight feels.

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Katelynn Verville

What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-02-12 18:17:27

Monkey

02/13/2020 at 6:58 PM

Monkey

Last activity on 02/20/2021 at 5:59 AM

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8 comments posted | 8 in the Living with Multiple Sclerosis group

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I use to work at a lumber mill until it became a safety thing

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Marcus

What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-02-13 18:58:26

Monkey

02/13/2020 at 7:14 PM

Monkey

Last activity on 02/20/2021 at 5:59 AM

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8 comments posted | 8 in the Living with Multiple Sclerosis group

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What kinda job could a Ms patient do?

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Marcus

What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-02-13 19:14:34

Marques

03/17/2020 at 3:18 PM

Marques

Last activity on 01/16/2025 at 3:16 PM

Joined in 2020

2 comments posted | 2 in the Living with Multiple Sclerosis group

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Hey I would just like to yall about it and your experiences with it. I guess I could start by introducing myself and things that's happened with it I'm marques and I was diagnosed last summerish but I was having symptoms a bit before, my legs went numb I could still walk but I participate in track and field and it screwed with my technique really bad and i could barely throw anymore and then my whole left side went out numbness again and my eye crossed and all. I just want to meet and talk to people that are dealing with the same thing I am I just feel alone in this and I dont have really anyone to turn too because they either dont really care or are unable to relate.

What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-03-17 15:18:52

Newtoms

03/22/2020 at 12:38 AM

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Newtoms

Last activity on 12/12/2020 at 8:11 PM

Joined in 2020

10 comments posted | 10 in the Living with Multiple Sclerosis group

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Hello I'm new to this. I was diagnosed on the 5th of March. But my symptoms started before that. They started with a slight numbness in my legs and then all of a sudden I didn't want to walk and still don't want to walk but i do walk with a cane now short distance and a wheelchair for long distance. And it's affecting both my legs and my right stomach and chest now. Its also affecting my balance and sleep and my vision a little bit here and there

What is your MS story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-multiple-sclerosis/welcome-to-the-ms-community-1261 2020-03-22 00:38:53

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