Getting a diagnosis for multiple sclerosis (MS) can be a long and complex journey. It often involves multiple tests like MRIs, lumbar punctures, and neurological assessments, and for many, it's a time filled with uncertainty and frustration.
So we'd love to hear from you:
How long did it take to get your MS diagnosis?
What was the most difficult part of that period?
Were there any particular symptoms or turning points that finally led to answers?
Somya.P
Community managerGood advisor
Somya.P
Community manager
Last activity on 09/15/2025 at 12:06 PM
Joined in 2023
716 comments posted | 20 in the Living with Multiple Sclerosis group
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Hi everyone,
Hope you're doing well today!
Getting a diagnosis for multiple sclerosis (MS) can be a long and complex journey. It often involves multiple tests like MRIs, lumbar punctures, and neurological assessments, and for many, it's a time filled with uncertainty and frustration.
So we'd love to hear from you:
How long did it take to get your MS diagnosis?
What was the most difficult part of that period?
Were there any particular symptoms or turning points that finally led to answers?
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Let's share our experiences to help others who might still be in that in-between phase. You're not alone.
Looking forward to reading your stories,
Somya from the Carenity Team🌼