Getting a diagnosis for multiple sclerosis (MS) can be a long and complex journey. It often involves multiple tests like MRIs, lumbar punctures, and neurological assessments, and for many, it's a time filled with uncertainty and frustration.
So we'd love to hear from you:
How long did it take to get your MS diagnosis?
What was the most difficult part of that period?
Were there any particular symptoms or turning points that finally led to answers?
Somya.P
Community managerGood advisor
Somya.P
Community manager
Last activity on 06/13/2025 at 6:10 PM
Joined in 2023
647 comments posted | 19 in the Living with Multiple Sclerosis group
22 of their responses were helpful to members
Rewards
Good Advisor
Contributor
Messenger
Explorer
Friend
Hi everyone,
Hope you're doing well today!
Getting a diagnosis for multiple sclerosis (MS) can be a long and complex journey. It often involves multiple tests like MRIs, lumbar punctures, and neurological assessments, and for many, it's a time filled with uncertainty and frustration.
So we'd love to hear from you:
How long did it take to get your MS diagnosis?
What was the most difficult part of that period?
Were there any particular symptoms or turning points that finally led to answers?
@T'EbonySurles @sfkettles @C361811 @Ian1974 @Shiningstarspc @brentfordfc @Alwayshim @Janitza32 @KittyJ @Nikarenee @npolley @Bitners @rowdymarc1 @o2hope @Jenniferstone @Emmaturtle @Rosemary8658 @RichET @Lisaquag @Tamara6 @SadieMerle @Ebida28 @QueenAngel55 @Moller2 @Lemons @Niah1106 @Carriecolbey618 @Lrsdawg @Sassylady96 @Daynie20 @nhbeast @TonjaPaige @Jessinmike02 @Snowbunni3219 @b40d37em2l @Vsiliski @Blee85 @mrsmole @champmom1059 @Pansy1950 @joanne59 @caouterb @Carter12 @trina41 @jenlbryant73 @PrettyRicky613 @Lcrocs @josie1022 @BobbiSchaef @Cheermom70 @lewisk1 @Pamiety @Loosetooth @Aspieta @CHICKEN @djdot53yahoo.com @Obiron @Spooka @Cici707 @DeannaMcCammon @Jennifermckinney @Bbw4latinlover @msangeleyes05 @SCOTSGIRL @jordanfolkes @JLA0908 @veronicaevangelista @Horton42 @Maribor @Saustin485 @Mplamb1967 @Carric @Demwillingham @trewhellamisty @Lydiakele @AppleBerry28 @VaPenny @Bigdopeyfrog @lcy1049 @Flipster @jvrrey11 @MsKris @Langleton @Warc04 @Totiebug99 @Tracylct @CristinaYesenia @Nholbr @Soccer081105 @Chezfaye @John64 @78artist @Suzhussey @Lingrasci @Heartie1921 @jjhallett01 @Marque @LynneBrush @Suzie555 @gamyharness
Let's share our experiences to help others who might still be in that in-between phase. You're not alone.
Looking forward to reading your stories,
Somya from the Carenity Team🌼