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  • What is your multiple myeloma diagnosis story?
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Living with multiple myeloma

What is your multiple myeloma diagnosis story?

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avatar Lee__R

Lee__R

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03/15/2019 at 1:02 AM

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avatar Lee__R

Lee__R

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Last activity on 04/03/2020 at 5:04 PM

Joined in 2018


1,336 comments posted | 2 in the Living with multiple myeloma group

2 of their responses were helpful to members


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Hello members,

Multiple Myeloma can have several debiltating symptoms, such as: bone pain, nausea, fatigue, vomiting...the list goes on and early diagnosis can be crucial in determining the success of treatments.

 

How were you diagnosed? What were the initial signs/symptoms that made you seek further medical advice?

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avatar Yutraihoar773

Yutraihoar773

10/30/2021 at 6:25 PM

avatar Yutraihoar773

Yutraihoar773

Last activity on 08/28/2026 at 2:00 PM

Joined in 2021


13 comments posted | 3 in the Living with multiple myeloma group


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I'm diabetic and have blood tests often, and my Primary Dr. Said you need to check with Oncology Dr., because you have a protein.   When to Oncology Dr,  and she was very good to tell me about the process to fallow,  She need a BMB ( Bone Marrow Biopsy) , got done and the results was MM in 2nd stage.   Never in my life heard of MM, after that she told me that need 4 treatments and Bone Marrow Transplant.  I  was 66 years old at the time,  October 2019,  Got the 4 treatments with KYPROLIS, Desamethasom and Revlimid,  and I wasn't have any reactions only a little discomfort, got lucky to find a nice nurses at the Cancer Center, very helpful and caring,  I love everyone.  Next was ready for the Transplant but Covid-19 start and got to stop , until September 2020. I was in the hospital in October 23, got the transplant,  was 17 days and didn't have any major problems.  I'm 1 year from that day,  and felling well only minor things, I'm in remission and only take Revlimid 5mg daily.  Hope everyone doing well 🙏

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Jose


What is your multiple myeloma diagnosis story? https://www.carenity.us/forum/other-discussions/living-with-multiple-myeloma/how-were-you-diagnosed-what-were-the-initial-symptoms-and-signs-844 2021-10-30 18:25:26

avatar Leafeetrorish1

Leafeetrorish1

08/23/2023 at 2:01 PM

avatar Leafeetrorish1

Leafeetrorish1

Last activity on 02/05/2025 at 11:01 PM

Joined in 2023


1 comment posted | 1 in the Living with multiple myeloma group


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I was diagnosed from bloodwork in April 2023. My GP sent me to a hematologist when my platelets went down to 120 and hemoglobin dropped to 11.8. I have zero symptoms of MM but my proteins are very high and bone biopsy showed 60-70 percent cancer cells. Been treating since June with no drug side effects. I continue to run 30 miles per week and race half marathons with no issues at all. Now I’m faced with a decision on a transplant and having a tough time saying yes since I feel so good. I’m 60 years old and concerned the transplant will change the way I feel and impact my fitness level which I believe is why I’m feeling so good even though I have a diagnosis of MM.


What is your multiple myeloma diagnosis story? https://www.carenity.us/forum/other-discussions/living-with-multiple-myeloma/how-were-you-diagnosed-what-were-the-initial-symptoms-and-signs-844 2023-08-23 14:01:51

avatar Clepreableer8285

Clepreableer8285

10/04/2023 at 5:17 PM

avatar Clepreableer8285

Clepreableer8285

Last activity on 04/27/2025 at 2:55 AM

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18 comments posted | 1 in the Living with multiple myeloma group

4 of their responses were helpful to members


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I was diagnosed because I had an episode of syncope at a concert that resulted in an emergency hospitalization. At the hospital it was discovered as a direct result of needing a blood transfusion because of anemia.During the process of getting that transfusion it was discovered that I had Multiple Myeloma.


What is your multiple myeloma diagnosis story? https://www.carenity.us/forum/other-discussions/living-with-multiple-myeloma/how-were-you-diagnosed-what-were-the-initial-symptoms-and-signs-844 2023-10-04 17:17:36

avatar 78Frechouyos

78Frechouyos

10/12/2023 at 10:33 PM

avatar 78Frechouyos

78Frechouyos

Last activity on 12/24/2025 at 5:33 PM

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2 comments posted | 2 in the Living with multiple myeloma group


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I am 54, I was diagnosed with MM in Jan of 2022. I was admitted to hospital on Nov 20 of 2021 for internal bleeding. I had a terrible toothache and face was swollen and I took to many ibprophen and tylenol for pain that I caused a tear in my stomach and caused internal bleeding. I had 2 blood transfusions and was in icu for 2 days. Was getting ready to ho home on day before Thanksgiving when a different doctor came in and was looking at CT scan and wanted another before he would release me. Within an hour another doctor came in and said they felt I had metastatic bone cancer and wanted me to meet with oncology. I had all testing done in December complete with pet scan and ending with bone marrow biopsy which was a dry pull. On day in January that I had doctor appointment for results there was bad snow storm so we did FaceTime call. I will never forget it as sure Noone else will forget time they were told. My world flipped upside down that January morning and changed forever. I was only 52 and almost to stage 3. It was being aggressive and still is.

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Deanna


What is your multiple myeloma diagnosis story? https://www.carenity.us/forum/other-discussions/living-with-multiple-myeloma/how-were-you-diagnosed-what-were-the-initial-symptoms-and-signs-844 2023-10-12 22:33:31
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