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  • What is your lupus story? Let's share!
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Living with lupus

What is your lupus story? Let's share!

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avatar Lee__R

Lee__R

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Edited on 10/05/2019 at 11:20 PM

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avatar Lee__R

Lee__R

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Last activity on 04/03/2020 at 5:04 PM

Joined in 2018


1,337 comments posted | 37 in the Living with lupus group

2 of their responses were helpful to members


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Hello everyone,

Welcome to the Lupus community!

It is true that it is not easy to know the path / experience of each member with lupus or to know who to reach out to / know who is going through something similar. Trust is essential to be able to talk and share, especially in a community like this.

Therefore. we encourage all members in this group to introduce themselves.

Share a little about your story, when you were diagnosed, experiences, etc. with lupus to introduce yourself to the community! 

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avatar lupus38

lupus38

09/29/2019 at 2:27 AM

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avatar lupus38

lupus38

Last activity on 01/10/2023 at 10:56 AM

Joined in 2018


91 comments posted | 49 in the Living with lupus group


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Hi everyone. I have been a part of this community since 2018 and enjoy meeting everyone and talking to everyone. I am diagnosed with lupus, Crohn's, and depression... so you can say I have a little of it all.

I have been diagnosed with lupus since 2012. I experience great joint pain in my joints, which also become swollen - mainly elbows and knees from lupus. I have tried acupuncture to no avail for this.

I am trying to keep the inflammation down in my body as much as I can through having as much anti-inflammatory foods and supplements in my diet as lupus and Crohn's is making my body inflamed always. 

I look forward to meeting you all. I go through depression a lot because of everything... but let's be strong together. 


What is your lupus story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-lupus/welcome-to-the-lupus-community-1269 2019-09-29 02:27:21
avatar exit

Unregistered member

12/10/2019 at 9:39 PM

Hello my name is Sherri J have had Lupus for many years. But lately I have had blisters that turn hard in time. It itches and is giving me lot's of grief. What is this? Thank you 

 


What is your lupus story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-lupus/welcome-to-the-lupus-community-1269 2019-12-10 21:39:35

avatar Courtney_J

Courtney_J

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06/30/2020 at 5:54 PM

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avatar Courtney_J

Courtney_J

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Last activity on 08/08/2022 at 11:09 AM

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1,339 comments posted | 15 in the Living with lupus group

6 of their responses were helpful to members


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Hello everyone,

How are you doing? Have you seen this discussion? emoticon cute

What is your lupus story? How were you diagnosed? How are you doing now? What medications or treatments have you tried? Feel free to introduce yourself and share your story, your advice, or your support here!
@ac8‍ @Taniya‍ @moral201‍ @Soleana‍ @kp73palmer‍ @Tranthamkayla90‍ @Caletha39‍ @Mald5356‍ @Lisavas2566‍ @Dahunez‍ @LDaley‍ @Emmabrim39!‍ @Anume4Saara‍ @Sschiefelbein‍ @rburwell‍ @Sweetleaf‍ @Gcardona‍ 

Take care,
Courtney 

See the signature

Courtney_J, Community Manager, Carenity US


What is your lupus story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-lupus/welcome-to-the-lupus-community-1269 2020-06-30 17:54:58

avatar mvn481

mvn481

07/03/2020 at 5:55 PM

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avatar mvn481

mvn481

Last activity on 09/02/2023 at 12:01 AM

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70 comments posted | 25 in the Living with lupus group


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@Courtney_J Hi, I've had lupus for what seems like FOREVER now. I was diagnosed after having months of unexplained joint swelling and pain and fevers. It took a while to figure out. I've been on plaquenil for a while now so it's doing it's job for the most part but when I first started it was ROUGH and it took months for it to kick in. My lupus really has an impact on my mental health so I'm also on depression medication.

I guess if I had advice I'd say to make sure you take care of your mental health, chronic illness and especially lupus are SO hard on us, so make sure you get help if you need it!


What is your lupus story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-lupus/welcome-to-the-lupus-community-1269 2020-07-03 17:55:26

avatar theaternerd23

theaternerd23

07/04/2020 at 6:09 AM

avatar theaternerd23

theaternerd23

Last activity on 07/12/2020 at 1:09 AM

Joined in 2019


2 comments posted | 2 in the Living with lupus group


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hello everyone.  i got diagnosed with lupus my freshman year of high school. and i just graduated this year,  so that's pretty cool.  i actually got diagnosed on accident.  i lied and said i had a headache and i was dizzy so i could get out of going to the pep rally at my school.  tests were done and my bloodwork actually showed low platelets.  and after months of doctors i got diagnosed with lupus. 

i also have depression,  anxiety,  and ptsd.  so i'm really just Killing It with the mental health.  i'm going thru a little bit of an identity crisis right now.  i've become dependent on people,  not only because of my illness. and i am being better about that.  it's because 'm chasing something that i'm never gonna get. 

i'm chasing what life is like before i got sick.  when shit was good yanno?  but i've been in therapy for a loooong time now.  and it really does help to talk to someone.  (i also went to the beach yesterday and i got burnt so.... can't wait to see how that plays out in a couple days hahaha)


What is your lupus story? Let's share! https://www.carenity.us/forum/other-discussions/living-with-lupus/welcome-to-the-lupus-community-1269 2020-07-04 06:09:52

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