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  6. Have you ever participated in a clinical trial?
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Good to know

Have you ever participated in a clinical trial?

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avatar Courtney_J

Courtney_J

Community manager
01/29/2021 at 7:45 PM

Good advisor

Hello everyone,

How are you today? emoticon cute

Following the publication of our new article (What is a clinical trial?) I thought I'd open this discussion!

Clinical trials aim to improve the care and treatment of patients at all stages of their health condition.

What about you? Have you ever participated in a clinical trial? What were your motivations?
If not, would you be interested in doing so? Why or why not?

Feel free to discuss in the comments here!

Take care,
Courtney

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avatar acb0945

acb0945

01/29/2021 at 8:01 PM

Good advisor

I've never participated in one. I know how important they are, though. All the new treatments they've come out with like the COVID vaccine or even the biotherapies that have come out in recent years for RA and other conditions are really helping to make strides in patient care. That being said, I'm not sure that I'd want to be the guinea pig for some of these things, I'm not a risk taker so I guess I'd be afraid of getting the placebo or of having a bad reaction. Kudos to those who volunteer for them though!


Have you ever participated in a clinical trial? https://www.carenity.us/forum/other-discussions/good-to-know/have-you-ever-participated-in-a-clinical-trial-3007 2021-01-29 20:01:34

avatar Cathy61

Cathy61

01/30/2021 at 8:13 PM

Good advisor

I was in a clinical Trial at the Mayo Clinic ISPY 2,   for Triple Negative metaplastic breast cancer. I was stage 3 with some local spreading to my chest wall and Lymph Nodes.  I ended up taking myself off the trial because my tumor became so large my breast was Swollenx10, Red and the pain was Unbearable.  Later on in my treatment at Avera Cancer Institute Under the care of World Reknowed Breast Cancer Researcher , Brian Leyland-Jones I was put on 1 year of KEYTRUDA.  I’m not sure which cured me, however here I am Five years later.  


Have you ever participated in a clinical trial? https://www.carenity.us/forum/other-discussions/good-to-know/have-you-ever-participated-in-a-clinical-trial-3007 2021-01-30 20:13:31

avatar mrsfjl

mrsfjl

01/30/2021 at 9:50 PM

I was in a clinical trial when I was a child.  My parents enrolled me in a trial of the Salk vaccine against polio.  At the time, they didn’t know if I received the vaccine or a placebo.  As it turned out, I did receive the vaccine.  I still have the Polio Pioneer Card I received with Dr. salk’s autograph on it.


Have you ever participated in a clinical trial? https://www.carenity.us/forum/other-discussions/good-to-know/have-you-ever-participated-in-a-clinical-trial-3007 2021-01-30 21:50:04

avatar Gatorgirl

Gatorgirl

Edited on 01/31/2021 at 2:03 AM

Good advisor

Yes I've actually participated in a couple different trials.

One was for Betapace for my Ventricular Tachycardia. 

I was given my medication free for a few years as I joined late in the trial.

And the other was Baclofen time released for my Spasticity. I was given my medication free during trial and paid each visit and for special testing. I made

$ 1500.00 for the whole year.

And yes I would do it again. Prefer the money ones of course😁

 


Have you ever participated in a clinical trial? https://www.carenity.us/forum/other-discussions/good-to-know/have-you-ever-participated-in-a-clinical-trial-3007 2021-01-31 01:55:26

avatar Gatorgirl

Gatorgirl

01/31/2021 at 2:06 AM

Good advisor

@mrsfjl thank you for sharing


Have you ever participated in a clinical trial? https://www.carenity.us/forum/other-discussions/good-to-know/have-you-ever-participated-in-a-clinical-trial-3007 2021-01-31 02:06:56

avatar Gatorgirl

Gatorgirl

01/31/2021 at 2:07 AM

Good advisor

@Cathy61 thank you for sharing with us.


Have you ever participated in a clinical trial? https://www.carenity.us/forum/other-discussions/good-to-know/have-you-ever-participated-in-a-clinical-trial-3007 2021-01-31 02:07:27

avatar Gatorgirl

Gatorgirl

01/31/2021 at 2:07 AM

Good advisor

@Cathy61 thank you for sharing with us.


Have you ever participated in a clinical trial? https://www.carenity.us/forum/other-discussions/good-to-know/have-you-ever-participated-in-a-clinical-trial-3007 2021-01-31 02:07:56

avatar Grandma105

Grandma105

01/31/2021 at 5:26 AM

I have never been in a clinical trial but certainly would participate if there was one in my area.  I feel they are important.


Have you ever participated in a clinical trial? https://www.carenity.us/forum/other-discussions/good-to-know/have-you-ever-participated-in-a-clinical-trial-3007 2021-01-31 05:26:02

avatar Csinnermon1

Csinnermon1

01/31/2021 at 8:16 AM

I have never been in one but I am open to it.


Have you ever participated in a clinical trial? https://www.carenity.us/forum/other-discussions/good-to-know/have-you-ever-participated-in-a-clinical-trial-3007 2021-01-31 08:16:38

avatar Tinkal

Tinkal

01/31/2021 at 5:07 PM

Good advisor

I have participated 2 studies, both for COPD.  I would participate again but I am in a rural area and on 02 24/7.


Have you ever participated in a clinical trial? https://www.carenity.us/forum/other-discussions/good-to-know/have-you-ever-participated-in-a-clinical-trial-3007 2021-01-31 17:07:41
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